Re:Family Pain Study

Heema109 — Wed, 16 Mar 2005 16:11:00 GMT

Hi Everyone,

Rhematoid Arthritis(RA) is definitely linked to hereditary genes. There is a new genetic test that is being launched in the USA called HLA-DRB1-Shared Epitope Kit. It is used to diagnose patients to see if they are at increased risk of getting RA. If RA is caught in it's early stages then it can easily be treated before much bone damage occurs. This kit is great for testing family members to see if they are at high risk. The kit is sold all over Europe and the makers of this kit is now launching it in the USA.

This test can also help people who have advanced stages of RA. There is a study that showed RA-patients who inherited 2 copies of the gene significantly respond more to treatment with etanercept(Embrel). It's best to get the test done rather than waste time being treated with a drug that doesn't fully work on you.

By the way Health Insurance covers the cost of this test.

for more information email: heema_i@yahoo.com

Family Pain Study

Barbara45 — Thu, 10 Mar 2005 21:38:06 GMT

ANNOUNCING AN ANONYMOUS
ONLINE RESEARCH STUDY AT
http://www.FamilyPainStudy.com

Do you have a family member who is diagnosed with chronic pain?
If so, your experience and insights will provide important information for a current research study. Although many individuals suffer from chronic pain, very little research is available to understand how families cope (manage the stress) when an adult family member has been diagnosed with chronic pain. Your help is needed to provided a better understanding of what it is like for families to be in close contact with a family member experiencing chronic pain

A potential benefit to you for your participation in this research is the opportunity to receive a summary of the results that will show the many ways that family members cope with the experience of chronic pain in the family. Significant findings will also be submitted to professional journals and to chronic pain organizations to encourage the development of programs, policies, and continued research to benefit chronic pain families.

You are invited to become a participant in this research if ALL of the following statements are TRUE for you: (Note: In this research, family is defined as people, living together or in close contact, who take care of one another and provide guidance for any dependent members of the group.)

· I am an adult, 18 years old or older, and I am not currently diagnosed with chronic pain.

· I consider myself a family member closely involved with the family member who is diagnosed with non-cancerous chronic pain (i.e., chronic low back pain, arthritis, fibromyalgia, migraines, abdominal pain, facial pain, RSD, etc.).

· My family member has been diagnosed with non-cancerous chronic pain for a minimum of 6 months and is an adult, 18 years or older.

If ALL of the above statements are true for you and you are willing to help researchers learn more about families and chronic pain, click on the Internet address below to read the Information/Consent Letter that will link you to the survey.

http://www.FamilyPainStudy.com

Note: This research study is part of a doctoral degree requirement in Family Studies at Texas Woman’s University (TWU) in Denton, Texas and has been approved by the TWU Institutional Review Board, which means the study meets all standards of ethical requirements, assuring rights to voluntary participation and withdrawal at any time plus complete confidentiality. The research website is designed so that absolutely no identifiable information, including email addresses or routing numbers, will be attached to the survey when it is submitted, and no participant will be contacted by anyone. The survey will take approximately 30 to 45 minutes to complete.

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Re:Family Pain Study

Family Pain Study