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shoulder pain and just feeling tired and bad... Expand / Collapse
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ginnste53
Posted Thursday, February 08, 2007 7:49 PM


 

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Last Login: Thursday, July 31, 2008 12:33 PM
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Hello everyone its been a while since I have been o the message boards. I started to have a new ache this time in my right shoulder. I had 2 injections of cortizone neither of which worked completely. I had a mri but it showed nothing. My rheumys nurse said ti was an impengment. I had to ask my primary what that meant. No one gave me any solution to the problem. I worked for 8 yrs. and two months at a nursing home in housekeeping. I left there gave my two weeks notice and thought I will get a sit down job. I did and I wasn't going fast enough for them so it was out the door for me. I cried so hard because in our county sit down jobs are far and few in between. I applied at retail stores part time and I got 0 phone calls. I just get more and more depressed. I am use to working now I feel useless. My poor husband had to get another job and I hardly see him. I fught with the insurance company to get anything to help with meds. The company my husbands worked at for nearly 15 yrs is a small comapny less then 10 employees so the insurance doesn't even have to be offered. I asked my dr. if I may be eligiable for disability I really never got a response. I get on crying jags. I'm sure I am not alone in this. I tried to find an at home job on computer but you have to be real careful with that.I just don't feel productive anymore. Sometimes I think people think I am making this all up. I tried to paint my walls and I paid for it in both my knees from going up and down the ladder. Is this what we all have in store. I was on humira and that fell apart due to the insurance. I do not enjoy having all these meds in me I think it messes up your body. Sorry I sound like a real whinner. I just feel so alone. My children are grown and out of the house everytime I try to help myself I feel like I keep getting shot down. Any advice sure would be welcomed
god bless us all who have this disease people don't seem to take it seriously enough
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Catherine20
Posted Friday, February 09, 2007 5:27 PM


 

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Last Login: Thursday, July 31, 2008 12:56 PM
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Hey let me tell you, i just look though this site not wanting to tell anyone what i was going though. i was reading though your message and know what you are going though. I am a 40 year student and feeling like I am the only one with this...this what ever we are calling RA that is not the name i am giving it. I have often wonder what did to be in so much pain. Yea the doctor told me just slow down dont to do much, you know all the long lists. after many trials of different meds they have now put me on Remacade ( If i spelled that right) my life has slowly started to come back to normal. i still slow down and do the things i love like taking care of my two grown girls and Geology. So now i dont feel so alone. I hope you take great care of your self and tell your family you need just a lot of love and a little more help. take care Catherine
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Sue20
Posted Friday, February 09, 2007 6:34 PM


 

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Last Login: Tuesday, March 02, 2010 11:04 AM
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I know how isolating this ra can be. No one understands, the pain, the worry, the confustion of it all. I really wish it had a different name than rheumatory arthritis, because everyone knows somebody with an arthritic knee so they think put some Ben Gay on it what is the big deal.Well it is big deal, lives are turned upside down, futures look bleak and scary especially for those of us that are very independent and don't have support families. Not that I want sympathy, I don't, but I do want people to know the seriousness of this chronic illness and the side effects of these most toxic drugs that we are on just to get through the day and do all the tasks most take for granted,i.e.brushing teeth, getting dressed,driving etc. You all know, it is very frustrating and for me anyway I am consumed by it I try not to be but I realize I am always thinking about it, probably because every move reminds me.


I am grateful for this board, at least I know the people here understand.

Sue
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Jeannine152
Posted Friday, February 09, 2007 11:48 PM


 

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Last Login: Thursday, June 18, 2009 10:50 AM
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Hi ginnste53,
I have had a bout with neck pain myself this past few weeks. I think it has been bothering me for at least 1 month now. The problem with having arthritis, I think any kind of arthritis, is that you dont know what is normal aches and pains, colds, viruses, etc. I keep a lot of pain to myself for a while because I never know what it may be caused by.
You sound alot like me. I have gained so much weight since the summer because of immobility. Its hard. I have a desk job where i can't, and don't, get up very often which doesnt help and when I get home I dont feel like doing much. I cook dinner for my kids, 2 boys, do laundry, straighten up, and by them i'm wiped out. i have been put on Remicade which has helped my energy level enourmously.
Your daughter gave good advice to you. I just hope that you can find something that fulfills you the way the nursing home did. Maybe volunteering once or twice a week would help boost your morale and get you out of the house for a while.
Well, anyway, I just wanted to reply and let you know you are not alone. i wish you the best.
Jeannine
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Sue20
Posted Saturday, February 10, 2007 2:05 AM


 

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Last Login: Tuesday, March 02, 2010 11:04 AM
Posts: 190, Visits: 16
For my neck pain, a friend made me a long skinny pillow, it sort of looks like a draft breaker that you put down at the base of a door to keep the cold air out, it is filled with white rice. When my neck gets real stiff I microwave this for 2 minutes then place around my neck and shoulders, it really feels good and it helps.

Sue
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Sue20
Posted Monday, February 12, 2007 7:24 AM


 

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Sleep,oh yes how people take it for granted, if i get 3-4 a night it is a good night. This does not help a healthy person let alone someone with a chronic illness. You never get restoritive sleep and that is desparately needed. I told my dr. and he just looks at me like yeah what do you want me to do about it? These doctors are unbelievable,they are so insenstive. I understand they must get sick of hearing it but they did choose this line of medicine and are getting paid dearly. My rheumy has never even looked at any of my joints except wrist, because they are obvious. You are so right, there answer is just always another pill.

You should check to see if you can get disablity, my guess is that you could.What country are you in anyway?

Hope today is a good one.

Sue
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Darlene1
Posted Monday, February 12, 2007 4:21 PM


 

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Oh my goodness, it is so nice to see (read) people who have the same complaints that I do. I am having a bit of a pity party for myself today! Just when I thought things were going to get better I started declining again. I lived with Psoriatic Arthritis for three years before I was diagnosed and I am only 40 years old. I am one of the rare people that got the Psoriasis after the arthritis, so the doctors didn't find it, not that they looked hard! I am now on a full 1cc of Methotrexate once a week and Sulpha drugs for the rest of my life. I am doing better than before, last summer I went on holidays and had to sit in a wheel chair if we were doing any amount of walking. I now get around much better, but for the last week my wrists have developed a new swelling, which hurts like crazy. UGH. I have been swimming for 30 minutes at least 2-3 times a week, but I'll tell you I feel terrible afterwards. I am not sure what is going on, but hope to find out. Anyway, just wanted to say thanks. I have read your emails back and forth to each other and feel comforted by your words of encouragement to each other.
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Sue20
Posted Monday, February 12, 2007 5:55 PM


 

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Last Login: Tuesday, March 02, 2010 11:04 AM
Posts: 190, Visits: 16
Darlene,

My wrists are so bad I cannot swim so I joined an Arthritis Foundation aquatics program it is mild aerobics in the water, everyone in there is 65 or over (i am 45) so believe me the exercise is not strenuous at all. In fact if you were observing the class you wouldn't even no we were exercising, even so when I first started I felt terrible I couldn't believe it was from the class because it is so mild but it was and I stuck with it and it helps. My point is stick with it I think it will help in the long run.

Sue
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bettyb
Posted Friday, February 16, 2007 12:22 AM


 

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Last Login: Thursday, July 31, 2008 12:55 PM
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I am new to this board but I know how it feels to have RA because I have it too. I have had it since the 90's. I have read alot about it, trying to find out why some people get it. I read a book and now theres a web site called the Road Back. Its about a doctor who researched and found out this could be caused by an infection and his medication to perscribe is an antibiotic. So over the course of my RA I have taken antibiotics and have gotten good results. My rheumy doctor doesn't like the idea but the way I look at it, he doesn't have this and I do and I would try anything. Also the doctor that says antibiotics are for treatment has alot of experience. When I started reading books about it, I just kind of fell upon this book. The information there is different then the information from rheumy doctors. So I hope if someone reads my post, they will look into this because it has helped. And if anyone has had experiences with this kind of treatment? And does anyone find that things get worse in the cold weather? And I've read that diet plays a part. Also, I found, was recommended by a chiropractor to take fish oil supplements, is anyone familiar with this recommendation? I'm glad I found this message board because I don't really talk to anyone about this too much and also I really know how bad this feels.
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Sue20
Posted Friday, February 16, 2007 6:33 AM


 

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Last Login: Tuesday, March 02, 2010 11:04 AM
Posts: 190, Visits: 16
I am with you Betty, I don't like to talk about ra because I feel like people minimize it but the pain is unbelievable. I am not one to complain and have always considered myself pretty tough but this has knocked the wind out of my sails. Back in July I mentioned antibiotics to my rheumy and he pooh poohed the idea. I left it at that until recently I started reading The New Arthritis Breakthrough and within that book is Roadback, it was soooo interesting and made sense to me. Luckily there is someone in my area that does it and I have an appointment next week, I am so hopeful yet scared it won't work for me. I am so glad to hear you have had success, did you Herx? Did you stay on your traditional meds too? Continued good luck.
Sue
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Barbara4
Posted Saturday, February 17, 2007 4:26 PM


 

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Last Login: Thursday, July 31, 2008 1:11 PM
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You poor dear. I am sorry things are so rough for you and hope they improve. maybe you are trying to do too much physical stuff? I cannot imagine walking for two hours - two minutes gets to me these days. Keep trying on the office/desk job angle - something will come up.

It is interesting to read the replies of others. I was diagnosed last Fall and feel like all I do is ache and complain to my husband. I feel like a rotten wife and wonder if I am being a baby about this disease but now I know I am not the only one feeling like I do.

Here's to all of us with hopes that we will all find improvements soon!
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Michela6
Posted Monday, February 19, 2007 2:38 PM


 

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Last Login: Thursday, July 31, 2008 1:12 PM
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This is really good. I dont know anyone else with RA and like you all said you feel so alone and very misunderstood. I am 28 and just diagnosed 4 months or so ago (although I am sure it has been going on much longer) I have 2 daughters 3 & 6 and a very understanding husband who does a lot for me despite all that he works. I work 40 plus hours a week at a desk job but my hands are one of my worst issues and all the typing, writting, and clicking give me loads of pain by the time I get about half way through the day. I dont talk about the pain a lot I have always considered myself a tough girl, boxing and swim team when I was young. Now I hurt constantly even on all the meds... it is depressing at times feeling 68 instead of 28. I miss a lot of time with my babies and my sweet husband. Especially on the weekend I take my MTX (up to 8 2.5's a week now) on friday night before I go to bed and spend over half of saturday feeling nauseous and dizzy... lately my hands have been swelling so bad they dont look like mine. I am 5'8" and weigh around 130 pretty average but have long skinny fingers and when they swell they look like someone much bigger than me's hands... I feel sometimes very disconected from my body like it doesnt belong to me anymore... it belongs to all the drugs and the pain most of all. OK I just really wanted to say thanks to all of you for posting here and helping me not feel so alone or like I am crazy (it feels like people think that sometimes)it helps.
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pigletaloha
Posted Monday, February 19, 2007 8:59 PM


 

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Last Login: Thursday, July 31, 2008 1:08 PM
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The antibiotic makes senseo ne of the times I have felt the best were I was on Antibiotics twice due to I have had to serious upper respitory infections. I was on antibiotics but each time at the end of my course of antibiotics when I get off them within 7days I get a REALLLLY Bad flare.
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pigletaloha
Posted Monday, February 19, 2007 8:59 PM


 

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Last Login: Thursday, July 31, 2008 1:08 PM
Posts: 32, Visits: 0
The antibiotic makes senseo ne of the times I have felt the best were I was on Antibiotics twice due to I have had to serious upper respitory infections. I was on antibiotics but each time at the end of my course of antibiotics when I get off them within 7days I get a REALLLLY Bad flare.
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Lamona
Posted Tuesday, March 06, 2007 6:49 PM


 

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Last Login: Thursday, July 31, 2008 1:11 PM
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Sue20 - you mentioned that you have an appt with a dr. for antibiotics. How is it going? I'm really interested.
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Keli in Florida
Posted Tuesday, March 06, 2007 7:38 PM


 

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Last Login: Monday, February 22, 2010 8:07 AM
Posts: 490, Visits: 242
ginnste53,
I saw you mention your toes hurt and were swollen. Mine get like that a lot of the time also. One thing you may want to see if the doctor can check is your uric acid level. It's a blood test. Sometimes that can make your feet and toes hurt extremely. Just a thought.
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Keli in Florida
Posted Wednesday, March 07, 2007 8:35 PM


 

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Last Login: Monday, February 22, 2010 8:07 AM
Posts: 490, Visits: 242
They have not done anything yet. My mom is a RN (nurse)and she mentioned it to me since my toes have been so swollen and hurting but that was before the 60mg of prednisone. I have not been back to the doctor yet. I am going to mention it when I go back to the primary though on the 27th. Good luck, hope you get some pain relief soon.
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