Lymph Node Swelling/Inflammation

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Keli in Florida

Posted Friday, February 23, 2007 1:02 PM

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Anyone have any lymph node swelling? I have Psoriatic Arthritis have been battling upper resp infection/ broncitis since the middle of January. Around Feb 5th My lymph nodes in the inner thigh were swollen and very tender to the touch but went away. Now the nymph nodes in my neck are inflamed but that's to be expected with the upper resp infection and the bronchitis. I did a Medrol dose pack back the end of January now just saw the doctor again today and he has put me on a much stronger dose of Prednisone to see if it will help me to get rid of the infection, the tappering dose of 20mg, 3 a day to start for 3 days, then 2 for 5 days, then 1 for 6 days, all 20 mg. Hoping I don't need a biopsy that would be painful. Anyway, thanks for listening to my rant.

Keli

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Michelle343

Posted Friday, February 23, 2007 5:06 PM

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OMG girl! Why didnt you tell me - Kel? I knew you were sick with the upper respiratory infection, but you didnt tell me about the swollen lymph nodes in your thigh! Could it be a side affect from the meds? What are the docs saying?!?!

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Nancy5

Posted Friday, February 23, 2007 6:35 PM

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I have frequent lymph node swelling. Last summer I had a 1" sized lymph node removed and biopsied because it remained swollen for 5 months. luckily it came back negative. My doc. doesn't really know why I am having frequent swollen nodes. I have an appt. with a rheumatologist on monday. Is swollen lymph nodes common with arthritis?
Nancy

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Michelle343

Posted Friday, February 23, 2007 10:28 PM

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Wait a minute. I just thought of this. My sister has discoid lupus and right before she has a rash flare up, she vomits and them gets swollen lymph nodes all over her head and neck that I know of. I will ask her if she gets them anywhere else and get back to you guys. Peace and Blessings, Michelle

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Keli in Florida

Posted Saturday, February 24, 2007 10:05 AM

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Thanks for the replies guys, I know some auto-immune disorders can cause you to get swollen lymph nodes. I get upper resp infections all the time this current one I have been battling probably since the middle of January. I've not been able to get the mucus to drain no matter what i'm taking so the doctor went ahead and added the tappering dose of prednisone which I think is helping with the inflammion in my sinuses because I am finally able to blow my nose and guess what the stuff coming out is yellow. And it's so thick, I really don't know how i'm getting it thru my nose but that's that. The coughing is bronchial spasms for the most part so i've been on the inhaler since Jan 31st.Now i'm on another antibiotic called Avelox which thanks to my Pharmacy was free, they had a coupon so I didn't have to pay a dime, they are very good to me. Tessalon Pearls to help with the cough been on that since 1/31 as well.
Michelle,
The lymph nodes inside my thigh swelled up when I was in Ocala and it only lasted like from Feb 6th till maybe the 9th or so. So I didn't think anything about it unti this week. Putting 2 and 2 together when last friday not Feb 23 but the week before the ones in my neck started to swell, which it never usually happens so I knew I needed to go see the doctor and I did yesterday. He said the the swelling in the neck is to be expected with the upper resp infection but not in the thigh. So that was a little concerning to him. So I see him again in 3 weeks for a follow- unless I get worse. My rheumy, took me off Enbrel for atleast one month because she felt my immune system was too supressed. I know a side effect some people have claimed is lymphoma spelling ? not sure. Anyway. I saw her on Feb 13th, So I called her office yesterday because the primary still had not recieved the labwork, and he wanted to see what my white blood cell count was then. I may have to have more bloodwork done anyway, but they did a chest x-ray which I have not called yet for the results. But between the Medrol dose pack I did in the start of Feb, the cortisone shot in the shoulder for the rotator cuff and bursitis and the Prednisone, I'm gonna be full of drugs and probably the size of a house. I just want to be able to breathe again and be able to go back to the gym and work out for 30 mins is that too much to ask for? Or just walk a flight of stairs without going into a full blown coughing attack and having to use my inhaler. Well, I have gone on long enough. I hope you all have a great weekend.

Keli

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Ang

Posted Sunday, February 25, 2007 9:31 AM

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Keli: I'm new to this site, but have had arthritis for almost 20 years. Recently, I was diagnosed with relapsing polychondritis for the symptoms you are describing. The cough is absolutely horrible and nothing but high doses of prednisone stopped it. I have recently started Enbrel to help control the symptoms. I haven't been on it long enough to know how it will work, but relapsing polychondritis is often seen in combination with other autoimmune diseases. Do you have any problem with your ears?

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Keli in Florida

Posted Sunday, February 25, 2007 11:48 PM

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Ang,
That's interesting,I don't have much problems with my ears anymore. I can sometimes feel sinus drainage going down my ears when it does drain. Other times they feel full. When the sinuses drain down my ears it itches like crazy. I have a lot of scar tissue from when I was younger from previous ear infections, I had to have tubes put in my ears when I was about 5 years old. Now 28 yrs old. I have major sinuus and allergy problems. Now my ent is telling me he thinks I may have tmj which is something that I really don't have the time,money or patience to deal with. I get extremely bad headaches, migraines.I usually never get swollen lymph nodes or run fevers when I get sick and this cough is extreme compared to my normal allergy/ post nasal drip cough. I really appreciate all your information. I'm going to look that condition up. I have psoriatic arthritis which is auto-immune as well. Thanks again.

Keli

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Lori, also in FL.

Posted Monday, February 26, 2007 4:33 AM

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Hi folks,I am new to this board, and am not sure where to begin. I am seeking information about a possible condition called sacoidosis. I believe i may have this disorder,as I have been struggling for the past year or more with constant allergic eyes. The optometrist put me on steroid drops (tobradex, and then pred-forte) and this past week i have had bluriness or a "smear" on my right eye. I went to an opthamologist and my occular pressure was thru the roof. He diagnosed me with Glaucoma, but could not understand why I would have it at my age with no family history of it, no diabetes, and only being 42 yrs old. I mentioned the use of the Prd-forte drops, off and on about every 3 weeks i am prescribed them, and he said the Glaucoma may be caused by my being "steroid reactive". I am hoping this is the case and it will be temporary. But, has anyone ever heard of this?? In researching online it appears I may have the optical symptoms of the sarcoidosis.
I also frequently have a swelling that occurs just above my collarbone area. I asked my primary care doctor about this and he said it was just "too much of me itis" implying it would go away if I weighed less. I explained it was transient, but he didn't seem interested. I am 5'3" and weigh 150. I have constant neck/back pain, but was attributing that to an old auto accident injury.I just don't know what to think any more. Sorry to ramble but i am worried. Thankyou in advance to any advice anyone might be able to offer.

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Keli in Florida

Posted Monday, February 26, 2007 8:28 PM

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Lori,
I think I may have a friend who has this that runs in their family so I will talk to them about it and see if I can find in information. I hope it's not that but hope the Glaucoma is temp.

Good Luck!

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Ang

Posted Monday, February 26, 2007 11:59 PM

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Keli: That's interesting because psoriatic arthritis is another disease often associated with relapsing polychondritis. I know what you're talking about with feeling the ears drain and the full pressure. Originally I was told I had TMJ, also.

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Keli in Florida

Posted Tuesday, February 27, 2007 1:04 AM

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Hi Ang,
I have heard of this condition one other time. I lady who lives in Canada online. We have been talking for a few years now I think. The docs say she has psoriatic arthritis as well but she has not had the typical psoriasis presentation but she has all the other symptoms. Then she had another doctor tell her that they think she may have relapsing polychondritis. She gets hoarse sometimes mostly the pain they think hers is causing is in the chest. Her ear cartilage I believe is concerning to her and her doctor. The doctor told her that treatment for that and PA is the same basically. So what are we to do. Maybe I should bring the topic up to my rheumy. Do you know if it could cause my C-reactive protien levels in labs to stay high even though all my other lab work is normal? I don't know if you have your CRP checked at your doctor's office but mine has been high for atleast the past 5 years. Right now being off of my Enbrel, my whole head is killing me, my sinus cavities, jaw, I am just about at my wits end. I'm on the prednisone I thought that would help. Maybe it's truly just arthritis and not TMJ or the Relapsing polychondritis. Pain all the way down to my neck into one of my shoulders, muscle stiffness. Well, I think i'm going to try and get off this pc for tonight. Hope you have a good night.

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Ang

Posted Wednesday, February 28, 2007 12:26 AM

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Hi Keli, It's hard for me to distinquish what's what with two diagnosis with overlapping symptoms, but I know that many with RPC have a lot of the arthritis symptoms. How much prednisone are you on and why are you off Enbrel? The neck pain is one of the few things that really stop me in my tracks. Almost nauseating and when I went off the Imuran and switched to Enbrel, it was absolutely awful for about six weeks. My C reactive protein levels were about the only abnormal readings for a long time. My sed rate used to be high, but it's been down. Otherwise with the exception of abnormal liver enzymes as a result of medication, my labs run close to normal. The coughing and yes, hoarseness, are particularly troublesome to me now. In fact, I had gone to sleep and have been coughing so much, I got back up tonight. Let me know how you're doing. I was actually diagnosed at the Cleveland Clinic with the RPC. I don't know where you are in Florida, but I know Jacksonville has a branch of the clinic. Take care!

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Keli in Florida

Posted Wednesday, February 28, 2007 1:25 AM

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When I saw the rheumy on Feb 13th, I explained that I was again battling an upper resp infection. Everytime I go in her office I am either sick or just getting off antibiotics for being sick. So she says well the c-reactive protien could be high because your sick. Anyway it's been like this for years now atleast 3 if not up to 5 years now. I also had a Bacterial staph infection back in November but it happened right after my 3 month check up with her so I informed her of that and she was not happy to hear it. So she thinks the Enbrel has my immune system too supressed right now. So She has me off of Enbrel for atleast 1 month but then my lymph nodes were swollen no sooner than I left the office again and I got worse, so the next week I saw my primary doctor. He put me on Prednisone starting out at 20mg - 3 tabs a day for five days, then 2 tabs a day for five days then 1 tab a day for five days. Back end of Jan early Feb I did a medrol dose pack but I didn't get better so this is why he said he put me on the tappering dose. Still having to use the inhaler plus antibiotic for I think 10 days. I keep getting what he is calling bronchial spasms I just hope it doesnt' turn into asthma or anything like that.

I was just curious if your c-reactive protien is high a lot. Mine is always high when all my other labs are normal. I am in Jacksonville, I've been to Mayo clinic for Neurology and for the eye specialist once for my Dewaynes syndrome. I have major cardiac history and would love to blame the high CRP on something else besides that. Do you ever stop and think why me. I think this is my month to wonder why. When I went on Enbrel my sed rate went to normal, liver enzymes went to normal everything but the crp. My rheumy before Enbrel my liver enzymes were elevated, she said sometimes the bone erosion can actually show up in your liver enzymes lab test. Sometimes it's not the meds, not that yours isn't, it's just what happened to me. My liver enzymes went to normal levels within 2 months of going on Enbrel. I thought that was amazing and I was still on all the same meds I had been on before. strange. I do have to get pheregan for the naseau a lot. I know my spelling way off right now. Ok, well I should end this before it turns into a novel. Hope you have a good 0ne.

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Keli in Florida

Posted Saturday, March 10, 2007 12:01 AM

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Ok, so i'm going to post on this thread. Yesterday my throat started getting sore again, today my lymph nodes in my neck started to swell up again. Today was my last prednisone, March 4th sunday was my last antibiotic. So yet again I have swollen lymph nodes in the neck, still coughing, have been getting a white, kind of sticky mucus when I cough from my chest not a lot but some. (Today only so far, atleast it's not yellow yet) Hurts to talk. I was sent home from work because I went to employee health and was running a low grade fever. (99.3 after 2 tylenol 2 hours prior)Not to mention the 15 mg of mobic and prednisone not sure if that will have any effects on someone running a temp or not. I was suppose to see the primary on March 27th, but have to go back on Monday due to new the symptoms and have to see employee health afterwards to get released back to work again. I know he mentioned doing a biopsy of the lymph nodes if this continued when I saw him in Feb. Not really sure what's going to happen. Just sick and tired of being sick and tired. Well, I think that's about all for now. If anyone has any suggestions or advice please let me know.

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Penny07

Posted Thursday, November 15, 2007 1:36 PM

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I have been diagnosed with Psoriatic Arthritis for at least 8 years. I have had no skin problems except a few rashes in odd places at odd times and some pecular blisters on the soles of my feet during one episode.

However, I have been experiencing swollen lymph nodes in my neck and underarms. I also have frequent ear and upper respitory infections as well as frequent UTIs. So far none of my doctors--Int. Med, Rheu, ENT, Hematologist, and Uriologist can tell me why I get these infections so often, why I experience extreme fatigue, why I stay slightly anemic, why I have developed TMJ, why my R armpit lymph nodes hurt most of the time and develop large red knots, why I develop sausage digits in my hands and only my right foot. My right foot, right hip, right arm pit hurt a lot and keep me from walking or driving very far. And now I am experiencing eye pain, frequent pink eye, conjunctivitis and pain with light.

I have taken Remicade (developed a major blood infection and had to stop); Enbrel 50 mg 1xwk, Plaquenil (caused occular migranes), Methotrexate injections which cause hair loss. And lots of various kinds of pain pills that all knock me out.

I also end up taking lots of predisone in decreasing doses to deal with all of these symptoms from time to time. I frequently feel like I have the flu and sometimes run a low grade fever.

I too would like to know what kinds of arthritis contributes to swollen lymph nodes. My inflamation is always high even with Enbrel (well it does help some) and Methotrexate. I have to go see my Rhem next week and I am frustrated with her attempts to diagnose me. This is my 4th Rheum.

Any ideas and information would be greatly appreciated.

I live in the suburbs of Houston, Texas
Penny07

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Karen Giordano

Posted Saturday, October 17, 2009 8:15 PM

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Keli,
I actuallyjust signed on because I wanted to reply to you. Never actually done this before. Have you been tested for Lyme Disease? I have been dealing with it for a couple of years. The first year I had sinus infections 10 of the 12 on months. I also have joint pain in my knees and wrists and at its worst my hips. My lymph nodes swell up right before I get sick. Just a thought. I hope you feel better I know what it is like to be suffering and no one can give you an answer.
Karen

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Keli in Florida

Posted Tuesday, October 27, 2009 11:04 PM

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Hi Karen,
I have been tested several times for Lyme Disease. I still have constant issues with my sinuses. Either they are draining, i'm congested or it's a sinus infection. Recently also my white blood cells, hemaglobin and hemacrit have all been high. Just saw the rheumy today so waiting on the labs, if they are still high, then I may be headed to the hematologist. Thanks so much for your reply. Hope you are feeling well today.

Keli

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