I'm lonely and alone!

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Latasha117

Posted Tuesday, February 27, 2007 8:30 PM

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Last Login: Thursday, July 31, 2008 1:08 PM
Posts: 48, Visits: 0

I am just writing looking to see if others have some of the emtional pain and suffering along with the physical stuff. I certainly do. I was Dx with Major depression and a Generalized anxiety disorder long ago but lately things seem to just be getting worse. I am in grad school and I have a job on campus and pne off of campus. For the last several weeks I have not been able to get up and take care of my responsibilities like I am supposed to. I am not sure if it is just too cold or if I am just in a really bad place right now. I really dont know how to explain it. I guess I was looking for a place were I really did not have to.

I mean I am so fatigued when I get up in the morning I literally can not move, I CAN NOT MOVE!!! This is acompanied by pain but the fatigue has been worse than the pain lately. I am so achy though and this is also difficult for me to handle. I am just so tired of doing this and the worse thing is that most of the time I feel like I am doing it all alone. Yes, I do have a very supportive mother that prays for me all of the time and I have a couple of friends that are supportive as well but I just feel like they just dont know and no matter what I say to them they will never know how it feels to be dibilitated by such a horrible disease like RA. I can barley type this letter due to pain in my arm but I really wanted to see if someone out there knew how I was feeling. I have never felt so lonley in my life. I live alone and my family is in another city not far but they dont really visit and after work and/or school I am left here alone to take care of the responsibilites of my apartment (which I can barley do sometimes) and try to cook for myself (which most of the time I just stay hungry due to my pain and/or fatigue). I dont know whats worse have just having RA or having RA and being so alone all of the time?

Latasha

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FibromiteMN

Posted Tuesday, February 27, 2007 8:50 PM

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Last Login: Thursday, July 31, 2008 1:12 PM
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I really do understand what you are talking about. I have fibromyalgia and I went through 6 years of college. I have had fibro for 10 years and I am now 25. I was in the masters program at the U of M and couldn't finish my elementary licensure because my teachers didn't understand and either did the college about FM. All you can do is get the word out about FM and hope that some people will listen and pass the info around.
Remember Fibromyalgia Awareness Day is May 12th!!
With love,
Kristin

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Irene7

Posted Friday, March 02, 2007 11:47 AM

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Last Login: Saturday, January 09, 2010 9:28 PM
Posts: 11, Visits: 1

Hi Latasha117 -
Depression/Anxiety on top of RA and Grad school is a rough combination, especially when you're living alone. (been there, done it, got the diploma and anti-depressants)
Don't forget that stress is a common trigger for RA flares - so try to de-stress your life a little bit. If possible, take a break/sabatical from whatever activities you can, take hot bubble baths if possible - or whatever it is that relaxes you. Try doing easy meals (Hot Pockets, Lean Cuisine, etc). If you belong to a community organization or faith community, often they have ministries to help folks by bringing dinner, keeping company, helping around the house, etc. This is usually publicized for the elderly, but don't be ashamed to ask for help! Also, have you considered finding a roommate?
With prayers,
-Irene

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Tyaisha2

Posted Sunday, May 06, 2007 6:04 PM

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Last Login: Thursday, July 31, 2008 1:06 PM
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I know its hard! You have got to keep your head up. I have been there. I am still there. Its hard to be so young and be in pain. I have trouble moving as well and I get embarassed because my walk is not cute at all. I used to have a sexy walk! LOL Oh and I am also really tired often.

What are you studying in school! I finished Grad school in 2005. Just remember you are blessed.

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trixie08

Posted Sunday, May 06, 2007 11:58 PM

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Last Login: Thursday, July 31, 2008 1:14 PM
Posts: 8, Visits: 0

I think we are all in the same boat. We can't stop our lives for one day because of the pain or fatigue. I'm newly diagnosis and looking for some type of help. I thought the pain was part of my greiving process because I just lost my grandmother (who had RA for years) but my test showed different. I'm upset because it hurts for me to hold my 3 month old nephew and friends don't understand why I can't walk or get out of a chair quickly. Along with all of this I failed out of my last semester of school and have to wait til mid-Oct to start back up.
Any help/suggestions/advise is always appreciated....

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Latasha117

Posted Monday, May 14, 2007 5:06 AM

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Last Login: Thursday, July 31, 2008 1:08 PM
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Hey Tyaisha2,

I am studying Counseling Psychology. Was it difficult for you to get through your program? Have you been able to work in your field with your RA? How old are you? And I'm sure that you dont need a sexy walk to turn heads Smile

LOL!

As far a being blessed I know that things could be much worse for me but things still suck pretty bad and they are getting worse. I still try to remember to count my blessings though.

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Lynnebug

Posted Thursday, October 25, 2007 2:44 PM

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Last Login: Monday, April 20, 2009 10:48 PM
Posts: 6, Visits: 2

Dear Latasha:

I think I have an Idea of what you may be feeling (I'm not going to say I know how you feel, because noone can know what another person is feeling).

I'm a 45 yr old woman with PSA, and other health problems, including diabetes, Turner Syndrome, to name a few, and right now I'm off meds because of a drug reaction that put me in the hospital. During the whole week in the hospital, I had ONE visitor, and this was very very depressing, and I felt so lonely, and almost like I'd been abandoned.

My parents live about 600 miles away, and I have no local support. when I've reached out to my firends, they've either ignored me or rebuffed me, which is very dissapointing and hurtful.

The pain, fatigue and depression I'm feeling has made it almost impossible for me to cope with work, so I'm going to be going out on disability very soon. Things have been bad at work (not just for me, but for everyone) and the stress of work is not helping me cope with my joint pain and disability. My boss is very stressed and has been venting and taking her frustrations out on me and the rest of her staff. The best thing is for me to leave the stress of the office, and concentrate on myself. Obviously, I don't have anyone to look out for me, so I have to look out for myself....

If anyone has any advice on how to talk to "friends" and family about your need for support in such a way that they will step up to the plate and support you, I'd appreciate a shout.

All the best!

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