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lose_yourself_in_the_moment

Posted Wednesday, February 28, 2007 12:33 AM

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Last Login: Thursday, July 31, 2008 1:10 PM
Posts: 17, Visits: 0

I just wanted to let you guys know that I think it is the greatest thing that you have come to talk on here to other kids/teens/young adults about their arthritis to get a better understanding of your child’s. It makes me really happy to see how supportive some parents can be even after years that their child has had it. My mom was the one to go through it all with me, but since it’s been five years I feel that I rarely have her support anymore. I understand that she is very busy and consumed with other things, but I wish that she too would stop every once in awhile to hear other peoples stories so she knows that I’m not lying to her. It’s always makes everything better to hear a mother or father say “Is there anything I can do for you? Make you something to eat maybe?” instead of “you should know how to deal with it by now, get over it.” I think half of dealing with this disease is having the support of others around you, and one of the greatest support systems you can have as a teen is your parents. So thank you for stopping by, it makes me so happy to see parents on here. =)

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Taylor3

Posted Wednesday, April 18, 2007 1:09 PM

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Last Login: Thursday, July 31, 2008 1:12 PM
Posts: 2, Visits: 0

Hi - I have a 7yr old girl with JRS for a little over a month. She has it in her left wrist. She is going to phys therapy right now but only taking neproxen for pain, but she says her stomach hurts alot. Do you or your parents have any information for any medication that worked the best and any information on therapy. Just any info would be nice.
Thanks

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Dawn0

Posted Sunday, April 22, 2007 8:53 PM

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Last Login: Thursday, July 31, 2008 1:09 PM
Posts: 10, Visits: 0

taylor: This is just the beginning of many medications if your child has just been diagnosed. My son is 16 and has had jra for 12 of those years. He is in so much pain so often I don't know what I can do for him anymore. I hope your daughter needs nothing more than napersyn. You should ask her dr. for the address of the arthritis foundation and write to them. They had me, as a parent out in so many ways. Most of what i learn is thru them. They have brochures that you can give to her teachers that explain the disease to them. They have monthly magazines that teach you about all the medicines. Definately contact them. Good luck

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Karen27

Posted Friday, April 27, 2007 11:05 AM

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Last Login: Thursday, July 31, 2008 12:49 PM
Posts: 106, Visits: 0

Hello,
About the naprosyn.. I didn't read anything about you having her on a stomach med.. They are supposed to put them on something to protect the stomach.. maybe your dr has the same attitude ours.. wait and see?? wait for the ulcer???

Please contact the dr right away about that stomach pain!!
Karen

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