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zacharkd
Posted Friday, March 02, 2007 10:22 PM


 

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Last Login: Thursday, July 31, 2008 1:12 PM
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Hello everyone!
I was just diagnosed with Fibromyalgia last week and I was just wondering if you could give me pointers on how to feel better and such. I am only 20 and I'm trying to stay in the mainstream with my college age peers, but I am having real difficulty. Also, all of the information that I have been reading is so....technical...I would like to hear real stories from real people. Thanks a bunch!
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Emmab2003
Posted Friday, March 02, 2007 11:17 PM


 

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Last Login: Friday, August 07, 2009 11:20 PM
Posts: 283, Visits: 9
Hi: Sorry for your diagnosis but this is a pretty great bunch and I know many will be able to support you.
As they say in my local support group, this condition is so different for everyone. For instance, my diagnosis was of secondary Fibro (not stand alone but in addition to other conditions.) And what works for one may or may not work for others. So I encourage you to find a support group or three......and gather some info and hopefully you will find a doctor who works with you and what you would like to work on etc.
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KrissyInAZ
Posted Friday, April 20, 2007 1:05 AM


 

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Last Login: Thursday, July 31, 2008 1:09 PM
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Hi, and I'm sorry to hear that you've been diagnosed with FMS. I've had it for about 20 or so years but diagnosed with it for about 12. I'm 47 years old.

Like the Emmab stated, FMS affects everyone differently, and what might work great for me, may not work great for you, or for others. Along with finding a local support group, I would suggest that you go to your Public Library, and get yourself all the books there are on FMS. Learning about FMS, CFS (Chronic Fatigue Syndrome) and CMP (Chronic Myofascial Pain), is one of the keys to assist you in finding ways to dealing with these chronic syndromes. I had found two books at the Public Library that were very beneficial for me. I ended up buying one of the books because I wanted to keep a copy of that book on hand forever. That book is "Freedom from Fibromyalgia", and the part I liked was the meditation portion of the book. I use a lot of meditation. The other book is "Fibromyalgia and Chronic Myofascial Pain: A Survivor's Manual" by Dr. Devin Starlanyl. I just checked her website and it looks like she's got a new book out too. The great thing about Dr. Starlanyl, she suffers from FMS & CMP, herself. So, she knows what she is talking about!

Around Sept. 1998, I was in remission for awhile, and started exercising again, and riding horseback. March 1999, I had a horse accident, and not only did the FMS rear its ugly head again, I got to add CMP (Chronic Myofascial Pain) to my multiple medical diagnoses.

You will gain a lot of information from reading this message board, and by asking questions here also. Remember, there are no dumb questions. I hope that you are able to keep up your college studies, as that is very important to complete college. And, if it takes you a year or two longer than your peers, sobeit. You do what you can today, because the rest will be there tomorrow.

Take care,
Krissy
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tatiana8
Posted Sunday, May 06, 2007 11:43 PM


 

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Last Login: Thursday, July 31, 2008 1:15 PM
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Hi there,

well for starters it is going to be a long road. Hopefully, you don't get people trying to convince you that Fibromyalgia does not exist because I am tired of hearing it. Well other than taking to your doctor the best advice I can give you since I have had it for 7 years is to stay strong and try to get in lots of exercise. Most mornings it is hard for me to get out of bed but after I do I do lots of stretching and within a couple hours I feel better. Find a good support group and hopefully things will go good for you. God Bless!!!
Post #4100662
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Jenny15
Posted Monday, May 21, 2007 9:48 PM


 

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Last Login: Thursday, July 31, 2008 1:15 PM
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Hi everyone!!

I have just been diagnosed with Fibromyalgia last Friday and I am still lost and sad about it. It is good to hear that this disease is not so rare that at least there is someone to talk to! I am 32 and I am not so sure what should I do about it.For me the worst part is what some of you said... sometimes your family or friends even colleagues at work think that you are making all up. My Dr. said I should try to be as happy as I could...but the truth is that I am really scared about this. I have had problems on my knees and this started as a horrible back pain a year ago.. finally they diagnosed me. I do not live in the States. But I will be travelling to Florida in about a month for hollidays.. Do you know of a place where I could go there?

Thanks for being there!!


Best wishes

Jenny
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Emmab2003
Posted Monday, May 21, 2007 11:22 PM


 

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Last Login: Friday, August 07, 2009 11:20 PM
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Jenny: It must be at least medically accepted where you live then, or did you just get lucky in getting a diagnosis?
Hope you are able to enjoy your trip to Florida in every way.
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WWWoFIBROFIXoCOM
Posted Monday, July 23, 2007 3:42 AM


 

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Last Login: Thursday, July 31, 2008 12:33 PM
Posts: 27, Visits: 0
Just realized you might mean a place to go because of Fibro. Dr Thomas D Harris, MD is in Orlando, right behind Universal, in fact. People come from all over to see him.
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lisa33
Posted Thursday, July 26, 2007 12:06 PM


 

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Last Login: Thursday, July 31, 2008 1:16 PM
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hi I have just been diagnosed with fibro and still learning about the disease.If anyone can help,please do.I am 32 and confused.iv told some of my friends about it and tried to explain to them but they dont seem to understand.nor does my husband.i have 2 young boys 11 and 7,have not yet told them anything because im not sure what to say.they probably do wonder why im always tired or grumpy.i feel i dont know what to do half the time i feel as though im just in dream all the time and maybe i'll wakeup and i'll be myself again.does anybody understand?i dont!my body aches alot,and get alot of pain,sometimes i feel as if my legs are gonna just give way on me.does anybody else have that.what about your arms,especially when carrying your groceries or just lifting light things do they ache? mine do i was holding my friends newborn and had to give the baby back because i thought i might drop her.my arms just started aching and got really sore and felt heavy.do any of you have that? does anybody get memory loss?i forget things all the time.i read some things on the fibro brain fog.maybe thats what i have.i hope someone can help me with some details and info.thanks for listening to me,i must go now though i have a thumping headache.chat soon.
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Emmab2003
Posted Saturday, July 28, 2007 12:36 AM


 

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Last Login: Friday, August 07, 2009 11:20 PM
Posts: 283, Visits: 9
Lisa: Glad to hear you at least got a legitimate diagnosis, not glad you have to deal with fibro.
Does your husband read a lot or your friends? I think there are a number of excellent books out that you can buy to show them, and all sorts of good newsletters as well.
There are also some 'letters' you can print up to give people which explains why you feel as you do, even if you look fine.
Everyone can probably relate to that brain fog, though I know each of us have different levels of pain and different symptoms.
I cant say my arms get heavy, but for me my tendons seem to lock up. The other day I tried to lift a heavy shoebox with one hand and my hand gave out on me. that was scary.
I know everyone around here can relate to everything you wrote in some way or another. God bless, and hope you do find a way to get some support.
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WWWoFIBROFIXoCOM
Posted Thursday, August 02, 2007 10:05 AM


 

Group: Forum Members
Last Login: Thursday, July 31, 2008 12:33 PM
Posts: 27, Visits: 0
Lisa - there is good info on FMS.

www.FibroFix.com is an all free site.

Symptoms, Testing, Diagnosis, Tricks and Tips, Treatment.

Help is free by email or phone.

Nothing for sale.

Annie
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