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tatiana8
Posted Sunday, May 06, 2007 11:33 PM


 

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I have been diagnosed with Fibromyalgia since 2001 and things were going o.k. as far as meds went although still had my bad days. Then we moved since my husband is in the military and I get this new doctor who is trying to tell me that this condition does not exist. He said that it is depression and that all I need is antidepressents and my problems will go away. Well, needless to say he is no longer my doctor and I have a new doctor that I am seeing tomorrow and you know I am so tired of this game and how some people say it is in your head!!! Like I enjoy going to the doctor and make up these pains that I have had for so many years. Also, to tell you what if I have any depression it is since I have had to be tossed around from doctor to doctor and being put on meds that don't help and trying to be told that it is depression which if anything they are what lead to my depression since all I was looking for I someone to help with my condition. Is anyone out there as frustrated as I am? Would you like to talk? I can always use a friend who understands since there are so many that do not!!!!
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Emmab2003
Posted Monday, May 07, 2007 4:56 PM


 

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I hear ya.
My first visit to a rheumy dept in a large HMO run clinic was awful. They told me FM was not real, wrote in my records that I was never to be allowed back into the clinic.
I wasnt even asking for drugs, you would think I was!
Now i Have a great doctor, and a diagnosis and belong to a local support group and some really nice online groups as well.
It is frustrating and it needs to stop!
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tatiana8
Posted Monday, May 07, 2007 7:06 PM


 

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Thanks for replying.....It is nice to be able to talk to people that have the same thing and not feel so alone. My husband says he understands and I know he cares but only people with this condition truly understand. If you ever need to talk I am here for you as well. Thanks and be well!!!
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eva58
Posted Tuesday, May 08, 2007 6:47 PM


 

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Tatiana and Emma, trust me there are a lot of us out here who understand. I have Fibro, DDD, OA and possibly RA. I know how you feel. I was told that fibro was not a real disease, and that there was no such thing. That was my last visit to that physician. Pain is not in our heads or minds, but in our bodies. Stand up and fight for the treatment you need and deserve. We are not crazy, but seeking answers about the constant pain that we are in. Take care.
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tatiana8
Posted Tuesday, May 08, 2007 11:44 PM


 

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Thanks Emma

It is nice to hear that because I am so beyond frustrated and just tired of crying, tired of trying to get this condition under control. On top of all this I have 5 kids and a husband that is currently away in the military. I want to thank you for responding and making me feel like that there is hope and that one day I can finally feel better in mind and body. Thanks :0)
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Emmab2003
Posted Wednesday, May 09, 2007 12:24 AM


 

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Eva: Thanks for the encouragement. Someone at church wants me to attend a meeting at 4 PM one day next week. I cant handle those kind of meetings. I have to take a needed rest every afternoon and not be running around in rush hour (which yes, starts early here). Thanks for giving me the courage to discuss this with this person.
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Eunice20
Posted Wednesday, May 09, 2007 5:04 PM


 

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I have moved 6 times since being diagnosed in 2000. Sometimes I didn't find a Dr at all & other times I had trouble finding a Dr. who believed fibro is a real disorder. I was lucky enough most of the time to find Chiropractors who have been trained in treating fibro patients. I am very fortunate now to have a Dr. who not only believes fibro is real but also believes chiropractic treatment or physical therapy can help. I had to file Family Medical Leave papers with my work because I was using so much sick time. There are days I can only work in the morning or I can't get going in the morning so I don't get all my hours in for the week to keep my benefit so I'd use however many hours I needed per day to make my 30hrs a week.
My Dr. put on the papers that chiropractic care was part of my treatment plan.

Besides having fibro or because of fibro I am a number 1 clutz. I sprained my ankle Christmas Eve Day 2006. Then the end of Feb. 2007 I somehow hurt my ribs. I have to wear a brace on my ankle, cann't carry anything over 10 lbs especially upsteps, and I cann't use the big rag mops. So with the fibro I have missed alot of work this year.

People don't understand that even if I could do something yesterday it doesn't mean I'll be able to do it today. that is the hardest thing for me. Being able to come here & see that others struggle with the same types of things I do is a real encouragement to me because I know they understand how I feel & that I am not just being lazy.
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tatiana8
Posted Wednesday, May 09, 2007 6:12 PM


 

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Last Login: Thursday, July 31, 2008 1:15 PM
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Eunice,

You hit the nail on the head....I try to get people to understand the same things. I also have my days when I have all sorts of energy and other days I can't do a thing. I think the worst part of this is I don't feel like me anymore. I used to be so active and now I just feel limited. I think I do a great deal considering but still feel I fall short and I feel guilty when I can't do all the things I would like. It hurts when I hear the kids sometimes say, "Why are you always sick?" They want me to be able to jump on the trampoline and toss them around like thier father and I just can't.

I always have lower back pain and hip pain and my fingers and hands are normally swollen in the mornings. I wake up and it takes me awhile to get out of bed it is so painful. I lay down or sit for a few minutes and my body feels like the "Tinman" making his first movements. I just hope that things will get better soon!!!! Thanks for writing and if you ever need to talk I am here. Take care and Be Well!!!
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