Remicade, JRA & UC

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Remicade, JRA & UC

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Mabel0

Posted Friday, September 21, 2007 7:23 PM

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Last Login: Thursday, July 31, 2008 12:24 PM
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My name is Mabel and I am a 41 year old female who was diagnosed at age 2 with JRA. I've had several joint replacements and have tried almost every medication for arthtritis that exists. I was on Enbrel for seven years and it worked great for me. Unfortunately, it doesn't protect your colon from the inflammation that having an autoimmune disease causes. (This fact was a total surprise to me.) I started having severe to chronic diarrhea at the end of April of this year and have since then been diagnosed with "inflammatory bowel disease," specifically Ulcerative Colitis. I am not responding to any of the pill treatments and have since been switched from Enbrel to Humira. This new injection has properties that protects the colon but I am still experiencing problems with the colitis. My doctor now wants to start me on Remicade and says all his difficult cases like mine, are doing "Great!." I am afraid to try this new biological agent but feel I have no choice because my colitis isn't under control. Due to the chronic inflammation in the colon other problems could arise if I don't do something about it soon. I am just wondering if there someone who is on Remicade who could share their experience with me. I have very bad veins and this is an added concern. Your responses are very much appreciated. Thanks!

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Jenny Stoner

Posted Saturday, October 18, 2008 10:59 PM

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Last Login: Saturday, October 18, 2008 10:55 PM
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Hi! I had a great experience w/ remicade in the beginning. From the time I got up from the infusion chair it was is if my RA was cured...no pain, no swelling, no issues whatsoever. I thought I'd found my miracle drug! I was able to get off of the prednisone I'd been on for over 2 years. Then, after my third infusion, I started having allergic reactions during my infusions; hives, itching, swollen lips. We tried pre-medicating, but I reacted EVERY time for the next three infusions, so the doctor made me stop taking it.

I'd say it's definately worth a shot! If you don't have allergic reactions, the pain relief it gives is well worth it.

Good Luck!

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