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Shell0

Posted Wednesday, October 17, 2007 6:54 PM

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Last Login: Thursday, July 31, 2008 1:18 PM
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Tomorrow (10/18) my mother is scheduled for her 1st Remicade infusion. What should she expect? Does this drug really work? Has anyone developed cancer? The side effects are so scary! She is currently on Arava and MTX. Prednisone offered no relief. Any words of advise? HELP...

Post #4085753

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LadyeMac

Posted Thursday, October 18, 2007 10:54 AM

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Last Login: Monday, December 14, 2009 4:39 PM
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I've written about Remicade and what to expect and my experiences at everything-and-nothing-at-all.blogspot.com. Just click on the link in the right-hand menu that says "Remicade". I have another post that will be going up soon called "Remicade FAQ".

Cancer is a VERY rare side effect, and researchers do not agree as to whether it's the meds or not. People with RA are already at an increased risk for cancers, particularly lymphoma.

I would wonder though.. If prednisone didn't help, is it really inflammatory arthritis? Could the pain she's experiencing be from osteoarthritis (in addition to inflammatory arthritis)?

------------------------------------------------------------------
DX: Psoriatic Arthritis
PsA Meds: Remicade, MTX, Celebrex, Prednisone Unsure

, Folic Acid

"Well behaved women rarely make history."
--Laurel Thatcher Ulrich

"When we go down into ourselves, we find that we possess exactly what we desire."
--Simone Weil

Post #4111880

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Shell0

Posted Thursday, October 18, 2007 1:55 PM

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Last Login: Thursday, July 31, 2008 1:18 PM
Posts: 4, Visits: 0

Thank you for responding and for the heads up about the osteoarthritis. We will definately be following up on that lead. Your blog is so informative and helpful. I am printing it out for my mom to read as we are about to head out for her appt. Looking forward to reading your Remicade FAQ's blog. Smile

Thanks again!!

Post #4111881

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LadyeMac

Posted Friday, October 19, 2007 12:01 PM

Group: Forum Members
Last Login: Monday, December 14, 2009 4:39 PM
Posts: 570, Visits: 63

I'm glad you found the info helpful. I know that before I started Remicade, I wanted more information from a patient's perspetive, but it just wasn't out there.

FYI - the FAQ is up. If you have other questions, post them as a comment and I'll do my best to answer them or find the answers if I don't know.

------------------------------------------------------------------
DX: Psoriatic Arthritis
PsA Meds: Remicade, MTX, Celebrex, Prednisone Unsure

, Folic Acid

"Well behaved women rarely make history."
--Laurel Thatcher Ulrich

"When we go down into ourselves, we find that we possess exactly what we desire."
--Simone Weil

Post #4111882

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claireclarke

Posted Thursday, May 29, 2008 4:16 PM

Group: Forum Members
Last Login: Thursday, July 31, 2008 12:28 PM
Posts: 4, Visits: 0

I am really surprised the prenisone did not help.
I have been on Remicade for 7 years, and it has allowed me to retain my independant living. I have not had any side effects except from the methotrexate. Those side effects have been counteracted by taking folic acid.

Post #4111883

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