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Allergic Reaction from Enbrel Expand / Collapse
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CharVA
Posted Wednesday, October 24, 2007 2:09 PM


 

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Has anyone had an allergic reaction to Enbrel. I was on it for almost 3 months when all heck broke loose. I got hives everywhere. We weren't sure it was the Enbrel so I stopped all RA drug. I've itched for 3 weeks now! Yea! I look like I have the chicken pox with all the scratching. Help!
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JackieTX
Posted Tuesday, October 30, 2007 10:47 AM


 

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I had never had an allergic reaction to anything prior to being diagnosed. After taking Mobix for about 3 days, my eyes swelled shut, my face swelled, and I had a rash on my neck. So, we discontinued the Mobix even though the Dr. didn't really think that it was the cause. I wonder if it's just a part of the disease process. It hasn't happened again....but I also haven't taken anymore Mobix.
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BrokenSoul85
Posted Friday, October 17, 2008 5:10 PM


 

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Enbrel paralyzed me for a while, excrusiating pain, hives, welts, itching, stinging, burning, dry mouth, dry eyes, swollen lip, drug induced lupus and pleurisy (still have pleurisy), mouth sores, extreme excessive thirst, major weight loss (like 10 or more pds in a week), swollen lymph nodes, stomach irritations, easy bruising, swelling of ankles/wrists and more, headaches, etc. I will never ever even consider Enbrel again. To be honest, it wasn't worth it and ruined a big part of my life. But, that's me. Everyone makes their own decisions. Good luck!
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Deb Moll
Posted Thursday, December 11, 2008 7:11 PM


 

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I just wanted to say that I have just had an allergic reaction to the Humira injections. I have been on Humira since October 08, and had no problem (and no relief) from the injections until my third one. I had a large hive and itching around the injection site. I called my rhuemy and he said not to worry about it, it should go away in a couple of days. It did. Then on the 4th injection, I had hives on the bottom of my feet and palms of my hands and intense itching. Again I called and they said no problem...give it a couple days. Well it took more like 8 days to finally go away. On my last (5th) injection last Friday, I woke up during the night on Saturday with itching again and hives all over my stomach. Of course it is the weekend and can't call the Rhuemy so decided to wait until Monday since I thought I would get the same response again. I called on Monday and by that time, my face was swollen, eyes like slits, and intense itching all over my body. I also had a "pins and needles" type feeling in my face. After speaking with the Rhuemy's nurse she said she would call me back. I waited until Tuesday to hear from her. She said, "just stop taking it, sounds like an allergic reaction to the Humira. It builds up in your system and the reaction worsens as time goes by. She said that if I started having difficulties breathing to get to an ER immediately. Well, that scared me enough.
I have appt for the 17th of December and the nurse mentioned that maybe I should consider having Embrel infusions. I am really scared to start another drug, but realize that it is the only way to stop the progression of this disease. I am tired of being in pain and loosing more of my abilities to "move". I don't know what to do. Sounds like there are so many problems with no matter what drug you take. How does one know what to do..............HELP

Thanks for any advice or direction anyone can give me in helping to make this decision. I wish you all well and hope that each of us can have pain free days.

Deb
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BrokenSoul85
Posted Friday, December 12, 2008 4:42 AM


 

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I just had to say this. Okay, a couple of people have mentioned how the doctors say that they don't think the reactions are from the medication and others say that the reactions are "just because you are not use to the meds yet"....NOT TRUE. It is a reaction to the meds. I have been on almost every med they have, and trust me for long enough, the symptoms only get worse. Everyone makes their own decisions and has their own opinions, but mine is...it's all bull. Sorry, I'm just venting a little, but honestly...I will never EVER take another prescription medication again. Every time I do, I'm 'magically' diagnosed with something new on top of everything else and "there's no cause for it and it certainly isn't due to the 'medications'". Thanks to Cod Liver Oil and a great Anti-Inflammatory Organic diet...I'm feeling better than I have since diagnosed with all the problems. May each of you find your way and feel better (hopefully heal yourselves). Take care.
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Sheila Van Boxtel
Posted Thursday, January 15, 2009 9:25 AM


 

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My husband was diagnosed with AS in March. I can't beleive you have so many simular symptoms to what my husband is still having after recieving his enbrel injection Sept 30th 2008. He was amitted to hospital with an anaphlatic reaction. He is 42 years of age, and this is not quality of life for a young man with 3 young children. The stress that the whole family has endured is unforgiveable! We live in Canada and our Health Care system has not supported him through this terrinle experience.

We are STILL waiting to get in for a EMG to test his strength due to his weakness and fatigue. He reacts to a lot of differents foods. There isn't much that he can eat. He also has lost a lot of weight. Atleast 20 pounds since the injection. He has an ongoing rash almost like a bid on his chest. The headaches are horrific. He has had swelling in his arms, legs and currently his veins are bulging out of this arms, legs and temples. He also has experienced a terrible taste in his mouth along with an acid like odour form his mouth. ECT...... They want to rule out Lupis and MS since he took this drug. BUT they don't want to blame the enbrel according to the Dr. Our Dr. keeps reinforcing that reactions to the enbrel is rare. Personally there needs to be more info supplied to to the public before they start taking this drug.

Did you go to the Mayo Clinic? How did you find out about taking Cod Liver Oil? How many are taking a day?

Thanks for sharing your experinse! People just can't believe what my husband has been through. And now we can say that there really is someone that has experienced the same thing. We pray for this to be over hourly and daily!

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Rosewort
Posted Friday, November 06, 2009 2:36 PM


 

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Yeah.... reactions. I've been on Enbrel just under 3 months. I began in mid-August, 2009. I've also been on MTX, 15mg/week since late June. For the record, I'm 37 and I was dx'd with psoriatic arthritis in Dec. 2008, with first symptoms appearing in 2005.

Two weeks running I had allergic reactions after injecting the 50mg sureclick form of Enbrel. Each were delayed reactions, but the second one came on more quickly and was more intense than the first.

Consulting with my doc, he agreed that we should eliminate the possibility of my being allergic to either the latex on the pen cap, or to the preservative in the reagent. So this week, he changed my script to 2, 25mg vial kits. With this formulation, it's not premixed, so there's no preservative. I went in to get my injection and be monitored for any reaction; 30 min in I had none, so I was sent home.

The reaction came on later, and I woke up to it this morning. Not as nasty as last week's, but bad enough.

My doctor has recommended Simponi, and if that fails, we move to Humira. I really hope the Simponi works, because it was pretty devastating to realize that I've blown through 1/4 of my available biologic options by not being able to take Enbrel anymore. It was working so well, too! I went from being trapped in rooms unable to turn a doorknob, not being able to dress myself or cook without assistance to being able to paint, knit, crochet and do fine hand sewing again.
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Grandpavan
Posted Saturday, November 07, 2009 11:49 AM


 

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Welcome to the board. There is a lot more action on the Rheumatoid Arthritis forum and several people there have Psoriatic Arthritis and the treatment is very similar to that for RA. You are welcome to come there and you are much more likely to get answers. I'm sorry you are having trouble with the Enbrel. I do well on Methotrexate and Remicade for my RA. There are several biologics, not just the ones you mentioned. I don't think you mentioned Remicade, Orencia, Kineret or Rituxan and there are new ones in the pipeline. It is not uncommon to have problems with one medication and still have good success with a different but closely related medication. I hope you find something to control your PA. God bless.


Age 82, diagnosed RA 12/2001, married since 1952, 4 sons no daughters, 4 grandsons 1 granddaughter.  Doing well on Methotrexate and Remicade.
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