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CAG35
Posted Thursday, October 25, 2007 6:12 PM


 

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i had my arm surgery to remove the benign (non cancer) bone tumor around my radial nerve (main nerve) in my arm. it was far more intense then they ever expected and they told me it was a miricle of god that i hadn't loss the complete use of my arm because of the position on the tumor.

the bone tumor was in the muscle not in the bone, it was two pieces. one above the nerve and one below the nerve they were crushing the nerve. to discribe it the way my doctor did he said it looked like a string going through the middle of a large hard rock. it took them 45 minutes of chipping just to free up 3/4 of an inch of nerve. it covered over 2 and 1/2 inches of nerve. my nerve was very badly damaged from the tumor. the tumor had attached itself to the nerve completely and it was very delicate to try to peel it away.

i came out of surgery and the doctors had hoped to of had a response from that nerve in the 1st 24 hours. it didn't respond. now they say my arm will stay this way atleast several more months or more. the healing process is very slow and because my nerve was damanged so badly it may not come back anymore at all. i only can move my fingers slightly and bend my elbow a little bit. i can't move my hand it just hangs down and so do my fingers. i only have maybe 15% use if that.
i trust them whole heartedly and thank them for atleast having that much.

atleast alot of the pain in that area is gone for right now. they said they gave me cortasone shots during surgery.

i am going to take a break from the boards for awhile. i just am emotionally drained. i am not sure how to digest this all and i guess i just need some time to deal with it.

my whole life changed and it's just alot to take in.

if you want to reach me pm me and i'll check every few days and you can give me your email and i'll stay in touch when i can.

thanks for all the prayers and support through all of this and i'll come back when i feel alittle better.
Post #4086001
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pat59
Posted Thursday, October 25, 2007 6:20 PM


 

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Hi Carole..

Thanks for the update, please post when you can, and you will be in my thoughts...Glad some of the pain is gone, and i'm wishing you a speedy recovery, and also, that that nerve is going to do a turn around...Take Care



-----------------------------------------------------------------------------------------------------
Methotrexate 15 yrs, Enbrel 3 yrs, Humira 5 yrs, Rituxan 1 yr, now diagnosed with PSA and RA, back to Enbrel 50mg.x2 a week
Post #4113299
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Susanita
Posted Thursday, October 25, 2007 6:25 PM


 

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Hello Carole: I am sorry to hear about the surgery, and I can only guess how are you feeling right now. I just want you to know that I am here if you need something, or if you want to talk and vent. You are going to be miss, but take all the time you need for your recovery. I will be praying for you. Hugs, S.
Post #4113300
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Annaart
Posted Thursday, October 25, 2007 6:25 PM


 

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Carole, thank you for the update. I am sorry it wasn't better news, though it sounds like it isn't hopeless. I pray the next step goes better and you see a life type improvement soon.

Anna
Post #4113301
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teacherrobin
Posted Thursday, October 25, 2007 7:04 PM


 

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Carole, I'm sorry that things didn't go as well as you had hoped; however, miracles are still something that happen. Please know that you will remain in my prayers for healing of the nerve, as well as healing for your emotions in the midst of all of this. Please stay in touch as you can, as we all care for you very much.

Robin
Post #4113302
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Donna16
Posted Thursday, October 25, 2007 8:49 PM


 

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Carole,Thanks for taking the time to update everyone. I will def keep you in my thoughts and prayers. Hopefully over time the nerve will heal. Rest and take care of yourself-
Post #4113303
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Txnana
Posted Thursday, October 25, 2007 9:15 PM


 

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Dear Carole....Thank you so much for telling us how your surgery went and how you are doing. You are in my thoughts and prayers that you will heal and be able to use your arm and hand again. Get lots of rest!

Take care.
Txnana

RA and Sjogren's Syndrome

Remicade, MTX, Celebrex, Nexium, Lexapro, Folic Acid, Vitamin D, Calcium, Multi-Vitamin, Fish Oil, Diovan/HCT

"My Boss is a Jewish Carpenter."

Post #4113304
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Bob Byrnes
Posted Thursday, October 25, 2007 9:29 PM


 

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Hi Cag
Glad you back home.Now it's time to heal.Take care-
Bob
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Judy_smile37
Posted Thursday, October 25, 2007 11:21 PM


 

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It sounds like a horrible ordeal. Nerves can heal. There is lots of hope that it will get better.

((( HUGS ))),
Judy

Start 1989, DX RA 1994 On Rituxan, plaquenil, mobic, minocycline- In remission.
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Grandpavan
Posted Friday, October 26, 2007 12:44 AM


 

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Thanks for the update. At least it's good that you didn't let it go any farther before getting it fixed. I hope you regain at least some use of your arm and hand. Prayers are on the way. God bless.

Age 82, diagnosed RA 12/2001, married since 1952, 4 sons no daughters, 4 grandsons 1 granddaughter.  Doing well on Methotrexate and Remicade.
Post #4113307
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lulu
Posted Friday, October 26, 2007 9:33 AM


 

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Carole:
What courage and strength you have. I just though about you typing your post and thought what an ordeal that was for you.

Take your doctor's advice and rest and we will all pray for you, sending my extra spoons your way.

Godspeed!
Always,
Lulu

Always,

Lulu

 

I may have RA but RA does not have ME!!!

Post #4113308
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twister597
Posted Friday, October 26, 2007 10:04 AM


 

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Carole,
Thanks for letting us know how your surgery went. Please rest and take care of yourself. Nerves do heal,like we've learned with RA sometimes you have to have a boatload of patience and faith. I'm sending you prayers and spoons for a speedy recovery. Now go to starbucks and get a big pumpkin latte or whatever your heart desires and go see Cowboy. You know that old saying about the outside of a horse is good for the inside of a person. I truly believe that,or I wouldn't be here today!!!

Stay in touch when you can!!!!
Many hugs,
Carolyn

You do not learn anything the second time a mule kicks you!!!
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chris 2
Posted Friday, October 26, 2007 11:33 AM


 

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God bless you Carole. I can't even imagine what you're going through right now but you can rest assured that I'll be in constant prayer for you. We all love you and pray the Lord will take a hand in this and give you the healing you so need.

Love and hugs,
Chris

Friends are just angels who have forgotten how to fly
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Mustjazz
Posted Friday, October 26, 2007 11:54 AM


 

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Carole, you are in my prayers for a recovery beyond what the drs think can be done. You will be missed on the board. Please check in when you are able. Blessings, Bonnie

"We cannot change the cards we are dealt, just how we play the hand." --Randy Pausch (1960-7/25/08)"
 
ARE YOU A TIGGER OR AN EYEORE?
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Pam3
Posted Friday, October 26, 2007 12:06 PM


 

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Please take all the time you need . . . and remember that we're here for you when you need us.





______________________________________________________________________________________________________________________

"The flower that blooms in adversity is the most rare and beautiful of all." From the Disney Film Mulan
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jennifer19
Posted Friday, October 26, 2007 12:51 PM


 

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i will pray for you carole and hope that all works out for you and that you heal whole and well again,we are all here for you i hope youre recovery goes well .sending hugs jen
Post #4113313
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CAG35
Posted Saturday, October 27, 2007 12:25 PM


 

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thanks for all the kind words and support. this has been hard for me and i am pretty down. i'm sure that will go away.

thanks for the prayers
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jess53
Posted Saturday, October 27, 2007 12:36 PM


 

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Dearest Carole...it's normal to feel down after major surgery...surgery has the same effect on your body as does a huge car accident - and it takes time to recover completely...treat yourself kindly my dear friend...anytime a worrisome thought enters you mind, push it out and replace it with a positive plan for the future...because there is going to be a future and it will be a good one for you...rest and heal...you're in my thoughts and prayers daily..with God all things are possible sweetness...gentle hugs and much love, jess
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LEFTY IN LA
Posted Saturday, October 27, 2007 3:40 PM


 

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Lots of love, spoons & prayers headed your way. Keep your faith up and don't give up! I'll have the Caddy waiting with your 22" wheels! Just let me know what color you'd like! I have access to all the keys!
Take care! Thanks for your update and we look forward to hearing from you when you can!
Tammy

God Bless all my RA Friends!

Post #4113316
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CAG35
Posted Monday, October 29, 2007 1:31 AM


 

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thanks tammy and jess
hugs
carole
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