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Emmab2003
Posted Thursday, July 03, 2008 5:10 PM


 

Group: Forum Members
Last Login: Friday, August 07, 2009 11:20 PM
Posts: 283, Visits: 9
Would like to see folks posting here again.
Am I the only one who keeps looking for new messages?
Post #4090069
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Susan115
Posted Saturday, July 26, 2008 3:20 PM


 

Group: Forum Members
Last Login: Thursday, July 31, 2008 1:06 PM
Posts: 1, Visits: 0
I also noticed that there isn't many new entries listed.

Does anyone know of any new studies on Lyrica now that it's been used for fibro. pain for a while?

I'm reluctant to try this drug because I haven't been able to tolerate cymbalta, gabapentin/neurontin even at very low doses. I also have a "feeling" of inflammation already so actually having swelling wouldn't be fun!

Has anyone tried biofeedback for chronic pain control?
Any other coping techniques I should try.

I can't tolerate acupuncture, chiro, physical therapy.

I also have chronic neck pain and 24/7 headaches to add to my daily pain.
Post #4135623
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Emmab2003
Posted Sunday, July 27, 2008 11:04 PM


 

Group: Forum Members
Last Login: Friday, August 07, 2009 11:20 PM
Posts: 283, Visits: 9
I've known two people on Lyrica and both went off due to side effects.
Not much help for you.
I also understand what you're saying! I cant handle PT or chiropractic either.
It hurts too much, and the people who work on you dont always even understand fibro.
Hope to see more posting answers for you!
Post #4135624
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jennbradley03
Posted Tuesday, November 25, 2008 1:10 PM


 

Group: Forum Members
Last Login: Sunday, March 14, 2010 12:14 AM
Posts: 26, Visits: 29
there were alot of comments here the other time i was on i wonder if they deleted them all. cause i had put some stuff up cause i tried lryica before it was even fda approved and paid the 250 or more and it didnt help, but made me sick.. so i think its just different people have different bodys and symptoms..
Post #4172381
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Sheri Kollodziej
Posted Thursday, January 08, 2009 2:37 PM


 

Group: Forum Members
Last Login: Thursday, January 08, 2009 2:31 PM
Posts: 1, Visits: 1
Hi, I am new here and looking for others that have fibromyalga as I am not haveg any luck so far.  I have questions and would like to talk it over with someone that has the same problem.

I agree with your post..  I have tried it twice because both of my Dr.'s asked me to because they had wonderful results with other patients.  Both times was the same,  I was sick and down.  I am now on cymbalta and have some better results.  I was hoping for better but I will take what I can get.

Post #4178112
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LisaA
Posted Thursday, January 08, 2009 6:34 PM


 

Group: Forum Members
Last Login: Friday, June 19, 2009 5:45 PM
Posts: 355, Visits: 229
I have fibromyalgia. I also have RA and since that board is more active I post there. But I'm happy to talk about this monster too.

Lisa
Post #4178165
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Debora Powell
Posted Friday, January 09, 2009 1:11 PM


 

Group: Forum Members
Last Login: Friday, January 09, 2009 1:03 PM
Posts: 1, Visits: 1
I have had fibro for about 5 years - just recently also added sjogrens to the dx. I have been looking for years for an online support group that didn't descend into a discussion on how to get disablity. I work full time, I love my job and I want to continue to work and to be productive. I just want to find people that can identify with that and support each other in the daily struggle that the healthy world doesn't understand for those of us that are 'blessed' with these wicked entities.

I haven't tried Lyrica, but know 2 women that are on it, and it really helps them. I could not take cymbalta - the side effects about killed me. I take Lexapro, Ultram, and neurontin, and sometimes boost them with vicodin if it's a rough day. Right now, it's difficult to say what is fibro and what is Sjogrens. They aggravate each other, and some symptoms sem to overlap.

Post #4178308
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LisaA
Posted Friday, January 09, 2009 3:28 PM


 

Group: Forum Members
Last Login: Friday, June 19, 2009 5:45 PM
Posts: 355, Visits: 229
I can't take cymbalta. Nearly killed myself on it. I haven't tried Lyrica. My doctor knows how much I hate weight gain because it puts so much pressure on my joints so he said that it wasn't really worth trying. He said the odds of it working aren't that high so I chose not to take it. Right now Im only on Plaquenil and tramadol. Every day is a struggle but I do what I have to do.

Lisa
Post #4178349
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Emmab2003
Posted Sunday, February 01, 2009 12:49 AM


 

Group: Forum Members
Last Login: Friday, August 07, 2009 11:20 PM
Posts: 283, Visits: 9
Our local support group keeps up with the research and new ideas coming down the road.  I think soon there will be more choices than just Lyrica.  Most folks in our group didnt like it or stay on it.

Anyway, there should be some more choices soon.

Post #4182672
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