Northeast Ohio Fibro Friends -- Cleveland-area support group

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Amy Swinderman

Posted Wednesday, September 10, 2008 2:09 PM

Group: Forum Members
Last Login: Wednesday, September 10, 2008 6:16 PM
Posts: 1, Visits: 2

My name is Amy Swinderman and I am the president of the Northeast Ohio Fibro Friends (NEOFF). We are a support group founded by fibromyalgia patients, for fibromyalgia patients. We are a very close-knit group of Cleveland-area residents who have come together to provide each other with friendship, support and resources. We are not associated with any doctor, clinic or hospital, and we are not selling anything (nor are we interested in buying any "miracle" cures!).

We have social gatherings and meetings at the convenience of our members. We also have a private message board. In addition to these functions, we're also very interested in raising awareness of our disease. We have elected a board of directors to oversee fundraising and community awareness efforts. We have our own Web site, www.neoff.org. We are publishing our own quarterly newsletter, the NEOFF News. We are making and selling our own merchandise to raise money. In May, we testified before the Ohio Senate in support of Senate Bill 341, legislation that will proclaim January as Fibromyalgia Awareness Month in Ohio. We are currently working with the House sponsor on this bill and will be planning a fundraiser in January 2009 to mark the occasion.

As you can see, we have come a short way in a long time. We have done it all on our own by pooling our resources and talents together. We are tired of society's and the medical field's misperceptions and confusion about this disease. We're tired of going through life feeling like crap and this being OK with our doctors and families. We want better treatments. We want a cure. We are willing to fight for it. Would you like to join us?

If so, please visit www.neoff.org or e-mail us at info@neoff.org.

Thanks,

Amy Swinderman
NEOFF President
amyswinderman@yahoo.com

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Emmab2003

Posted Tuesday, November 04, 2008 5:59 PM

Group: Forum Members
Last Login: Friday, August 07, 2009 11:20 PM
Posts: 283, Visits: 9

JUst wanted to say hi to the Cleveland area.

I was born in Berea, Ohio!

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