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When to have total shoulder replacement... Expand / Collapse
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Posted Tuesday, December 16, 2008 9:09 AM


 

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Last Login: Tuesday, December 16, 2008 9:03 AM
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I am frustrated. 4 months ago, my dr. cleaned out my shoulder and at the time he was shocked at how bad the arthritis was. We have tried to do physical therapy - on good days I may make progress, but usually I am going backwards in my movement.
The dr. gave me a steroid shot in the shoulder - it did not good.
Now today I saw the dr. and he said it is going to have to be up to me when I need to see him again. And at that point he is going to send me to the shoulder specialist in their office. My problem is I cannot lift my arm above 80 degrees in front and hardly all to the side. I have pain the majority of the time. Is there anyone else out there who has had the shoulder replacement surgery and how did you know it was time to look into doing it?
Thank you,
Kim
Post #4175247
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Posted Saturday, January 10, 2009 4:59 PM


 

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Hi Kimberly, I'm 47 yrs old & had a partial shoulder replacement 2 yrs. ago. It was actually a "Copeland resurfacing cap" over my humeral head (the ball at the top of the arm that fits in the socket "glenoid") I.m sure you probably know the terminology but just in case you don't.

They chose this type of replacement because of my age.The resurfacing cap has a small stem & looks like a mushroom cap that fits over your own humeral head. It's very rare to have complete bone on bone in the shoulder even in your 60's much less in your 30' & 40's. I have Degenerative Joint Desease ( Osteoarthritis ) in both shoulders. The Copeland resurface saves bone if you are young & have healthy bone but no cartilage. Because if you have replacement surgery at such a young age, they only last about 15 yrs so you will need another, so you want to save as much bone as possible. My thought was " you never know what new medical proceedures they will come up with in the next 10 years.

I knew that I was ready for the surgery after living in pain (not sleeping on my shoulder, not being able to reach in the cabinet to get a plate or glass, pain in using a towel after a shower, etc.). I had several stroid shots that didn't help. I had 3 surgeries on my left shoulder to try to relieve the pain. Every time there was more & more cartilage damage until it was all gone on the humeral head. I was finally referred to a Shoulder Specialist. He recommended the partial replacement surgery. It was a tought decision. I waited about 9 months after seeing him for the first time before I decided to have the surgery. They did not replace the glenoid socket.

2 years later, I've had some relief but it's not all better. I saw another surgeon, he did a CT scan and saw the the glenoid socket was in bad shape now & they are suggesting removing my resurfacing cap & replacing the whole shoulder. I am going to wait for that surgery until I can't stand it anymore. The first one was very painful & a long recovery. I'm an active person (Dog Groomer & boater). I've decided to wait and do some research to find the perfect Dr to do this surgery. I've had too many shoulder surgeries that didn't work so I want the best this time.

My suggestion is to get several opinions. With my insurance, I had to see at least 2 Ortho Drs. before I could be referred to a Specialist in the big hospitals in Boston. I'm sure you've been in pain for a while but you don't want to go through what I went through so you need to wait for surgery until you can get the best Dr. possible.

I hope this helped.

If anyone out there knows a great shoulder replacement Surgeon in Boston, I'd appreciate a response.

Hopefully people will look at our posts & reply, Kimberly. Sorry for the long story but I needed to vent & I saw your post & know what you're going through. Good luck & write back if you have any questions or comments.

Deb

Post #4178509
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Posted Tuesday, February 03, 2009 2:48 AM


 

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Your husband's surgery sounds similar to mine. I had a Total Shoulder Replacement on April 29th of last year. Since then, the pain has not let up. I've tried medications, hot and cold packs, and nothing seems to help with the pain. Now there is an overgrowth of bone growing around the replacement, causing limited range of motion and pain. My Doctor will not operate again because he said that another surgery would be too risky, with all the muscles, and nerves involved. If I had another surgery, it could make it that I wouldn't be able to move my arm at all, and I could lose muscle, where my arm would just drop down, because there would be no muscle to hold it up. The doctor would not know what the outcome would be, until the surgery would be all done. Then it would be too late to reverse it. I just don't know what to do. I've tried getting a second opinion, but I have no health insurance, so no one will accept me for a second opinion without it. There are also a lot of other reasons why I can't get accepted for a second opinion. I've even called some of the hospitals with no luck. I had to have the Total Shoulder Replacement after I fell on my kitchen floor. When I fell, the ball of the shoulder popped out, and shattered in 4 pieces, I tore up my rotator cuff, and the shoulder was dislocated too. I had to wait 11 days for the Surgery, because I was trying to get some kind of assistance to help pay for the Surgery. This pain feels like it did when I first broke my shoulder. I thought the pain would let up after the Surgery, but it feels worse. I've even went to Physical Therapy for 8 weeks. It did help some, but my doctor wasn't too happy with the range of motion, or the fact that I was still in a lot of pain. He didn't send me back to Physical Therapy, because he said it didn't help much anyway. He said that the new overgrowth of bone is causing the limited range of motion, and pain. He said that there is nothing that can be done, without risk. He told me to keep doing my daily exercises, and told me to take Motrin for the pain. I think it may be helping my shoulder, so it doesn't freeze up,
but it's not helping with anything else. The new bone growth is rubbing against the Shoulder Replacement. I just don't know what to do anymore. The pain is affecting my quality of sleep. Please reply, with any suggestions. Thank you.
Post #4182937
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Posted Thursday, October 01, 2009 5:56 PM


 

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Of the three posters to this thread, have any of you have found relief? I had a tendon repair in March because of the pain, and the pain immediately got many times worse and stayed that way. At least my surgeon is willing to give me narcotics. I can't imagine only having Motrin, and I can't understand why so many doctors are content for their patients to live without adequate relief.

Anyway, the diagnosis is arthritis, and PT only makes it worse, so I'm down to a joint replacement, whether partial or full, and I don't know that I want to go through that, especially after reading such letters as you have written.
Post #4239865
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Posted Wednesday, November 18, 2009 1:14 PM


 

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I had partial replacement Sept 22nd and so far its been a rough road. They only had to replace the ball as the socket was still in good condition. I had the surgery done because of a great loss in the range of motion and pain. The range of motion is slowly improving as is the pain. THe physical therapist says the shoulder replacement is the toughest to rehab! I just saw the doctor for my 6 week checkup and he feels everything is progressing well. He did say it may not return to a fully functional shoulder but the progress already beats the old shoulder!! It does seem to be improving but at a very slow rate. I guess if I were to compare not using the arm to being where I'm at now, the surgery wins. I do however feel the choice of doctor is critical. I did my research and found the best I could. Dr. Cole at www.cartiledgedoc.org.
Post #4265312
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Posted Yesterday @ 10:16 PM


 

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I was just diagnosised with Avascular Necrosis of the left shoulder. I am getting a second opinion from Dr Warner at MGH. I heard he was the best for shoulders. Good Luck!
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