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Does OA count? Expand / Collapse
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Posted Thursday, March 05, 2009 8:44 AM


 

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Last Login: Monday, March 09, 2009 7:44 PM
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I read a lot on the forums here of the sufferings of people enduring RA -- some since childhood.  To me it seems to overshadow the stories found on bad old fashioned arthritis or OA.  Neither is a cake walk that's for sure.  I'm aware of a lot of medications prescribed and taken for people living with RA.  My issue is the suffering with the other kind of arthritis - OA.  Aside from the usual nsaids or a bit of fish oil and the old glucosamine/chondroiton mix -- there are no meds to prevent joint damage.  That to me is so sad.  I wish that there were.  But the damage continues to ravage bodies ... some at a younger age.  Personally I had both hips replaced at age 48 and just recently 3 years later both knees replaced.  And the disease progresses....ankles, hands etc....

I was thinking I might try to walk a one mile route in Atascadero CA ... with my cane.  But got to thinking -- does anyone really care about OA anyway?  As in when I approach people should I choose to do this...to ask for fundraising support --- would not I get some kind of crazy look -- like, "hey you are older than 50 and you have arthritis -- what's the big deal"

Any perspectives?  I know the RA meds in part are to help stop joint damage that would lead to joint replacement........well at 51 I am bionic in 4 wt. bearing joints and others maybe waiting in the wings........and I'm feel I'm left high and dry - with little support or understanding.

Post #4187697
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Posted Friday, March 06, 2009 9:14 AM


 

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Last Login: Wednesday, November 18, 2009 1:55 PM
Posts: 63, Visits: 68
  ME! ME! I Care! The Arthritis Foundation Cares! You are not alone.

The Arthritis Foundation is in the middle of a huge initiative to bring OA to the forefront and to ensure that progress is made toward developing treatments and prevention strategies for OA.

The OA Initiative includes many facets:

  • A screening questionnaire that people can use to help determine if they have arthritis and to encourage them to get diagnosed by a health professional
  • An Ad Council Campaign (to hit the airwaves January 2010) about OA and disability prevention
  • A Summit with the the Centers for Disease Control and Prevention to lay out a 5-year public health plan for the country regarding OA
  • The Foundation funds $2.5 Million in OA-specific research and holds an OA-specific research conference each year.
  • The Foundation has just formed an OA Alliance and OA Alliance Leadership Group to ensure that the Foundation is meeting the needs of this important constituency group.
  • Evidence-Based Life Improvement Series classes
  • The list goes on. 

We are here for you. We feel your pain. We want to help and empower you.

GET OUT THERE AND WALK AS BEST YOU CAN.

YOU'LL BE HAPPY YOU DID!  

Post #4187947
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Posted Friday, March 06, 2009 10:40 AM


 

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Last Login: Wednesday, October 28, 2009 4:27 PM
Posts: 33, Visits: 311
Hi Susan,

I felt the same way you do for some time, and still do during the worst times of pain.  It seemed everything was RA or nothing, but many with RA also suffer with OA and other diseases.  What I found encouraging was the sharing of the trials and successes in day to day life here on the forum.  Even though I have not been diagnoised with RA, the pain is very real, the flares are there, the limitations are definitely there too.  At least we OA sufferers are not swamped with perscriptions and side affects, but on the opposite view we have nothing to slow the destruction.  Keep your chin up and hang in there.  I hope you stay connected and it sounds like the Arthritis Foundation and Advocacy Program are on high speed to put "our OA disease" up front too.  I also have had a knee replacement and am facing another.  The stigma of aging and arthritis is an unfair image all of us deal with also.  I was only 45 when the pain began and walked and felt like 70.  No one seems to understand except for those who struggle also.  It's an unfortunate fact - for now anyway.  Please do stay connected.  There is a lot we can learn from those in the forum and everyone is very supportive.  Take care! God Bless!

Linda

Post #4187971
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Posted Friday, March 06, 2009 12:07 PM


 

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Last Login: Wednesday, November 18, 2009 1:55 PM
Posts: 63, Visits: 68
That was a lovely reply Linda.
Post #4187990
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Posted Friday, March 06, 2009 4:33 PM


 

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Last Login: Wednesday, October 28, 2009 4:27 PM
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Thanks.  We're all struggling.

Linda

Post #4188043
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Posted Monday, March 09, 2009 7:44 PM


 

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Last Login: Monday, March 09, 2009 7:44 PM
Posts: 4, Visits: 6
I am really happy to have just now found your post.....I really am delighted to have had the opportunity to see that this is being put into the forefront.  Joint replacement surgery is big business, big risk, big suffering, big insurance, big expense, and a big footprint for the future when you have them before 50 years old.  ALL those things mentioned are in serious need of attention.  The ignorance among health care professionals is outrageous......but can they be to blame?  Research is needed...prevention health care tracks need to be entered by all OA sufferers from the get go -- especially if they are very young in age.  Prevention or slowing of OA through education by physicians for patients is vital.  But physicians need cutting edge evidence based research outcomes to teach patients with confidence and authority of - how to help OA from reaching it's end stage so young in a life. Nutrition information and study is vital.  Incentives for participating and doing your part toward wellness with arthritis would be wise from insurers.  Somebody is looking at the big picture and unfortunately it's more often than not companies and manufacturers of artificial joints............yes we need them now --- but what if the research $'s were toward keeping cartilage healthy?  Protecting cartilage?  Providing bones with what they need to thrive?  Nutrients for healthy care of the body and to ward off damaging OA.

I appreciate your information and support.

Post #4188474
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Posted Monday, March 09, 2009 7:51 PM


 

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Last Login: Monday, March 09, 2009 7:44 PM
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Thank you Linda -- it was great to hear from you....and I'm sorry about your knees & pain of arthritis.  Yes I know about being in your forties with OA -- my doc replaced my hips and when he rounded he came into the room stating, "well I pulled out an 80 year old hip!" -- that was the first one...didn't even ask about the other joints LOL!  Hang in there and thanks again for listening and responding.
Post #4188475
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Posted Friday, May 01, 2009 11:04 AM


 

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Last Login: Wednesday, May 13, 2009 11:33 AM
Posts: 11, Visits: 15

The sad part is besides OA and RA, there are more than 100 forms of arthritis. I think it’s important that we always talk about arthritis as one disease. It affects people without regard to gender, race, or age. OA is by far the largest of the more than 100 forms of arthritis, and as Beth points out, a lot is being done. All of the 100 forms of arthritis are important to those affected by their particular form of arthritis.

 

Thanks to Linda for bringing awareness to her OA, and having the courage to say something. Awareness is the only way we can raise funds for more research into prevention and one day a cure as well as all the great programs the Arthritis Foundation offers.

Post #4201516
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