Haven't posted for a long time. I have stopped working this year because of extreme fatigue and pain. My husband is not supportive at all. He tells me fibromyalgia is not real b/c there are no tests to confirm dx. Rheumatologist has made the dx as well as diagnosing me with inflammatory arthritis of unknown cause. I feel so frustrated b/c it doesn't matter how much research I quote to him, in my flare ups when I can't do as much as usual he tells me I'm lazy and basically good for nothing b/c I don't bring in a paycheck.... I feel so sad....
Hugs
I know what you feel? You know I am very young also, I'm 31 and I have sever Fibro and I was a very active person,I am Profesor and I has been more than a year thet everything on my life has been changing life stile, married relationship, daily activities.
Is very hard when before you were so active and free to do anything and now most of the time you are tired, in pain, and of course to heaar from your husband that everything is in your head, but you know I do think is also difficult for the love one to know that you are suffering from a disease that nobody nows why is the main reason. Tell me about it, my husband in the beginning was the same but now he is understanding a bit more, You know as a woman is difficult because you want to be the same but let me tell you, is not the same.
Is difficult to deal with, BUT NO IMPOSSIBLE, I do have SEVERE FIBRO and Ankylosing Spondolytis and everyday my goal is to try to wake up in the morning and make breakfast for my husband and try to be without too many complaints about my pain, because I know he knows how I feel and I am sure yours knows also how you feel? but sometimes is difficult for guys to understand or to show that they do understand your pain, that's why you have to show him or anybodyelse how you feel? without complaining too much.
DON'T LET GO DOWN YOURSELF, ANYTHING YOU CAN DO EVERYDAY IS A BIG PLUS, TRY TO CARE A BIT MORE ABOUT YOURSELF, GET PRETTY, TRY TO DO WHAT YOU CAN AROUND THE HOUSE OR OUT, BUT DON'T PUSH TOO MUCH JUST DO WHAT YOU CAN, IF YOU ARE TIRED? OF COURSE REST, YOU HAVE THE RIGHT, BUT TRY NOT TO SPEND TOO MUCH TIME ON BED, BECAUSE THAT WILL DEPRESS YOU OR MAKE YOU TO FEEL MORE PAIN
A LITTLE BIT EVERY DAY IS GOOD AND THAT WILL MAKE YOU FEEL GOOD AND AGAIN PRETTY AND ACTIVE BUT FIRST THING YOU WILL SHOW YOUR HUSBAND AND EVERYBODY ELSE THAT EVEN WITH PAIN YOU TRY TO DO SOMETHING PRODUCTIVE
Well, if you want to talk or have a frien please do let me know we can share lots of things and pains janettep@andromeca.com
Have a better day tomorrow