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Posted Friday, May 01, 2009 12:30 PM


 

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Last Login: Monday, May 04, 2009 1:34 PM
Posts: 5, Visits: 15
Hi all,

Haven't posted for a long time.  I have stopped working this year because of extreme fatigue and pain.  My husband is not supportive at all.  He tells me fibromyalgia is not real b/c there are no tests to confirm dx.  Rheumatologist has made the dx as well as diagnosing me with inflammatory arthritis of unknown cause.  I feel so frustrated b/c it doesn't matter how much research I quote to him, in my flare ups when I can't do as much as usual he tells me I'm lazy and basically good for nothing b/c I don't bring in a paycheck....  I feel so sad....

Post #4201539
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Posted Monday, May 04, 2009 10:20 AM


 

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Last Login: Monday, May 04, 2009 12:42 PM
Posts: 1, Visits: 3
I'm so sorry you are going through such a tough time.  Hang in there.  I know how tough it is with a disbelieving spouse. 

Hugs

Post #4201877
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Posted Monday, May 04, 2009 7:40 PM


 

Group: Forum Members
Last Login: Yesterday @ 1:02 PM
Posts: 348, Visits: 1,120
Hi Paula,

Sorry you are going through this. Have you ever taken your hubby to one of your appointments wtih the rheumy? Maybe you can suggest that for the next visit and the doctor can explain what is going on to him. I've heard others say it really helps in these situations.

Take care & good luck,
Lisa


------------------------------------------------
DX=Spondyloarthropathy, Fibromyalgia
Meds= Humira, Sulfasalazine, Cymbalta, Skelaxin, Flexeril (5-10mg at night)
Post #4201954
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Posted Friday, May 15, 2009 12:24 AM


 

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Last Login: Yesterday @ 10:20 PM
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Hi, Paula!  I would suggest the same as Pinkie.  I think it makes a world of difference for your husband to hear it from your rheumy.  If you can get him to go with you, it might be a good idea to talk to the rheumy ahead of time and advise him of the problems you are experiencing with your husband.  That way the doc is prepared for his attitude.  It could be important, too, since you have some sort of inflammatory arthritis on top of the fibro.  I've heard that most people with fibro do have a form of inflammatory arthritis with it.  I'll hold you in my prayers.  Please post again and let us know how things work out.  Pam
Post #4203691
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Posted Thursday, July 30, 2009 3:11 AM


 

Group: Forum Members
Last Login: Friday, August 07, 2009 9:47 PM
Posts: 10, Visits: 12
Hi Paula;

I know what you feel? You know I am very young also, I'm 31 and I have sever Fibro and I was a very active person,I am Profesor and I has been more than a year thet everything on my life has been changing life stile, married relationship, daily activities.

Is very hard when before you were so active and free to do anything and now most of the time you are tired, in pain, and of course to heaar from your husband that everything is in your head, but you know I do think is also difficult for the love one to know that you are suffering from a disease that nobody nows why is the main reason. Tell me about it, my husband in the beginning was the same but now he is understanding a bit more, You know as a woman is difficult because you want to be the same but let me tell you, is not the same.

Is difficult to deal with, BUT NO IMPOSSIBLE, I do have SEVERE FIBRO and Ankylosing Spondolytis and everyday my goal is to try to wake up in the morning and make breakfast for my husband and try to be without too many complaints about my pain, because I know he knows how I feel and I am sure yours knows also how you feel? but sometimes is difficult for guys to understand or to show that they do understand your pain, that's why you have to show him or anybodyelse how you feel? without complaining too much.

DON'T LET GO DOWN YOURSELF, ANYTHING YOU CAN DO EVERYDAY IS A BIG PLUS, TRY TO CARE A BIT MORE ABOUT YOURSELF, GET PRETTY, TRY TO DO WHAT YOU CAN AROUND THE HOUSE OR OUT, BUT DON'T PUSH TOO MUCH JUST DO WHAT YOU CAN, IF YOU ARE TIRED? OF COURSE REST, YOU HAVE THE RIGHT, BUT TRY NOT TO SPEND TOO MUCH TIME ON BED, BECAUSE THAT WILL DEPRESS YOU OR MAKE YOU TO FEEL MORE PAIN

A LITTLE BIT EVERY DAY IS GOOD AND THAT WILL MAKE YOU FEEL GOOD AND AGAIN PRETTY AND ACTIVE BUT FIRST THING YOU WILL SHOW YOUR HUSBAND AND EVERYBODY ELSE THAT EVEN WITH PAIN YOU TRY TO DO SOMETHING PRODUCTIVE

Well, if you want to talk or have a frien please do let me know we can share lots of things and pains janettep@andromeca.com

Have a better day tomorrow

Post #4221405
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