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Posted Friday, May 01, 2009 12:30 PM


 

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Hi all,

Haven't posted for a long time.  I have stopped working this year because of extreme fatigue and pain.  My husband is not supportive at all.  He tells me fibromyalgia is not real b/c there are no tests to confirm dx.  Rheumatologist has made the dx as well as diagnosing me with inflammatory arthritis of unknown cause.  I feel so frustrated b/c it doesn't matter how much research I quote to him, in my flare ups when I can't do as much as usual he tells me I'm lazy and basically good for nothing b/c I don't bring in a paycheck....  I feel so sad....

Post #4201539
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Posted Monday, May 04, 2009 10:20 AM


 

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I'm so sorry you are going through such a tough time.  Hang in there.  I know how tough it is with a disbelieving spouse. 

Hugs

Post #4201877
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Posted Monday, May 04, 2009 7:40 PM


 

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Hi Paula,

Sorry you are going through this. Have you ever taken your hubby to one of your appointments wtih the rheumy? Maybe you can suggest that for the next visit and the doctor can explain what is going on to him. I've heard others say it really helps in these situations.

Take care & good luck,
Lisa


------------------------------------------------

DX=Spondyloarthropathy, Hyponea (type of apnea), early carpal tunnel

Meds= Humira
Post #4201954
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Posted Friday, May 15, 2009 12:24 AM


 

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Hi, Paula!  I would suggest the same as Pinkie.  I think it makes a world of difference for your husband to hear it from your rheumy.  If you can get him to go with you, it might be a good idea to talk to the rheumy ahead of time and advise him of the problems you are experiencing with your husband.  That way the doc is prepared for his attitude.  It could be important, too, since you have some sort of inflammatory arthritis on top of the fibro.  I've heard that most people with fibro do have a form of inflammatory arthritis with it.  I'll hold you in my prayers.  Please post again and let us know how things work out.  Pam
Post #4203691
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Posted Thursday, July 30, 2009 3:11 AM


 

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Hi Paula;

I know what you feel? You know I am very young also, I'm 31 and I have sever Fibro and I was a very active person,I am Profesor and I has been more than a year thet everything on my life has been changing life stile, married relationship, daily activities.

Is very hard when before you were so active and free to do anything and now most of the time you are tired, in pain, and of course to heaar from your husband that everything is in your head, but you know I do think is also difficult for the love one to know that you are suffering from a disease that nobody nows why is the main reason. Tell me about it, my husband in the beginning was the same but now he is understanding a bit more, You know as a woman is difficult because you want to be the same but let me tell you, is not the same.

Is difficult to deal with, BUT NO IMPOSSIBLE, I do have SEVERE FIBRO and Ankylosing Spondolytis and everyday my goal is to try to wake up in the morning and make breakfast for my husband and try to be without too many complaints about my pain, because I know he knows how I feel and I am sure yours knows also how you feel? but sometimes is difficult for guys to understand or to show that they do understand your pain, that's why you have to show him or anybodyelse how you feel? without complaining too much.

DON'T LET GO DOWN YOURSELF, ANYTHING YOU CAN DO EVERYDAY IS A BIG PLUS, TRY TO CARE A BIT MORE ABOUT YOURSELF, GET PRETTY, TRY TO DO WHAT YOU CAN AROUND THE HOUSE OR OUT, BUT DON'T PUSH TOO MUCH JUST DO WHAT YOU CAN, IF YOU ARE TIRED? OF COURSE REST, YOU HAVE THE RIGHT, BUT TRY NOT TO SPEND TOO MUCH TIME ON BED, BECAUSE THAT WILL DEPRESS YOU OR MAKE YOU TO FEEL MORE PAIN

A LITTLE BIT EVERY DAY IS GOOD AND THAT WILL MAKE YOU FEEL GOOD AND AGAIN PRETTY AND ACTIVE BUT FIRST THING YOU WILL SHOW YOUR HUSBAND AND EVERYBODY ELSE THAT EVEN WITH PAIN YOU TRY TO DO SOMETHING PRODUCTIVE

Well, if you want to talk or have a frien please do let me know we can share lots of things and pains janettep@andromeca.com

Have a better day tomorrow

Post #4221405
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Posted Sunday, February 21, 2010 8:44 AM


 

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Gosh...I know exactly what you are going through. I have been suffering from fibro for about 8 years with underlying conditions just recently diagnosed. My husband and I have been together for 6 1/2 years. At first, my frequent napping and "narcolepsy" espisodes, were kind of joked about & he sort of would make little jokes. I have always kept a job even though the pain & fatigue was unbearable at times...I think it was the "guilt" factor. When we got together I had 2 kids from a previous marriage & I felt it was my responsiblity to pull my weight..& I did & took very good care of him as well. I really shouldn't have felt guilty because I did receive a child support check every month. Everything was great for the first 2 years..He was awesome with my girls, he worked hard & was attentive to me.

4 years ago we decided to get married & have a baby. The pregnancy took a major toll on my body, but I made it through..it was a tough birth & she had a hard time for 5 days, but ended up perfect. Since then everything has gone down hill. We lost our house, he lost a couple of jobs, & we have an insane 3 year-old. I somehow in my head have managed to push through all of it & my pain...but the past year my health has been getting worse, and my husband miserable & COMPLETELY unsupportive. He calls me a hypochondriac, lazy, and a drama queen. I can't even begin to tell how infuriated that makes me. I won't even start about how I feel about the direction he is taking..he hasn't worked in 6 months...I am STILL working!!! Since June, I had
knee surgery, been diagnosed with RA, Sjogren's, Raynaud's, and of course fibro..um hello! I am on work comp for my knee, but I am still the one taking responsibilty for everything & dealing with all of my own crap.

I have given him several articles, "The Spoon Theory" story, anything to make him understand what I am going through...he has not read ONE of them. He went to 1 appointment with me & told me the Dr. was a "crock".
I won't ramble on anymore, but I wanted to let you know you are not alone and you can vent to me any time! Courtney


RA, Sjogren's, Raynaud's, fibromyalsia

methotrexate(inj) folic acid, topamax, NSAIDs,B6,B12,fish oil, ginger root

Post #4324074
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Posted Sunday, February 21, 2010 10:04 AM


 

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Oh..and P.S., don't you dare feel guilty for taking a break!
Post #4324092
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Posted Monday, March 01, 2010 2:17 PM


 

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Paula and/or anyone else whose spouse treats them in a similar manner,

My heart breaks for you having to deal with a disbelieving spouse along with an incurable illness. So I have some very serious questions for you to ask yourself. Exactly how sick does he/she needs you to be before he/she is willing to be supportive. Cancer? Dying? What happens if, god forbid, you became paralyzed from an accident. At what point, in the most important relationship in your life, can you trust your life partner to support you in sickness? One of the reasons marriage vows contain the phrase "in sickness and in health" is because in marriage as in live anything can happen, isn't it? So why are you tolorating and/or allowing your spouse to disregard your needs? Is this how you would treat them if they were sick? Do you, somehow, believe you deserve to be treated with disregard and disrespect? Is this the only area in your marriage that your spouse treats you this way?

This disease is hard enough to deal with without the added burden of someone calling you lazy and a lier. So unless I were faking it and were lazy and a lier, I believe I would be asking myself if this is a person I can count on and trust for the rest of my life and if it is not do I really want them in my life.

This is for all you woman and men out there whose partners are not stepping up to the plate and supporting you while you are ill. Please know your job in life is not to be the best or healthiest cook/caretaker/lover/whatever your spouse wants for you to be for your spouse, your job in life is simply to be the best person that you can be for yourself and for the glory of God. This is, of course, only my personal opinion. Please take what you can use and ignore the rest.


As always take what you can use and toss the rest.
God Bless you and keep you.

Bette

Current DX: Inflammatory Ostearthritis (apparently this is not an oxymoron), Regular Osteoarthritis, IBS, Fibro & Depression (lol, can’t imagine why).
Current Meds & what they are for: Plaquinil (arthritis)Triamterene/Hctz (decrease water retention), Dicyclomine (IBS), Ropinirole (Restless Leg), Lexipro (AntiDepressant), Allopurinol (Uric Acid Reducer), Lortab (Pain), Flexiril (Muscle spasms), Savella (Fibromyalgia), Omeprazole DR (decrease stomach acid), Mobic (Anti-inflammatory), Omega 3 Fish Oil (anti-inflammatory), Super B-Complex.
Post #4328939
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Posted Wednesday, March 03, 2010 11:01 PM


 

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Well said Bette!
Post #4330774
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Posted Thursday, March 04, 2010 11:54 AM


 

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Bette,

Very well said,

Courtney... It could be that your husband is dealing with his own feelings of being inadequate, perhaps he would benefit from some therapy. Maybe you could reach out to him on a friendly level and offer your support to him, men are by instinct fixers and he cannot fix your health so perhaphs he is unable to accept your illness, ya know the whole mars and venus thing....

If that does not work then Bette is correct you should re evaluate your relationship or at least your expectations for the future.

Susan
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