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Psoriatic Arthritis Flares Expand / Collapse
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TammyRN
Posted Sunday, May 17, 2009 11:26 AM


 

Group: Forum Members
Last Login: Wednesday, May 20, 2009 12:47 AM
Posts: 2, Visits: 4
Hello everyone. I'm new to this site, and really hope to get to talk to someone who really gets that I HAVE PAINFUL ARTHRITIS! No I don't have gout, or spurs or...... At this moment in time, I'm really sick. I'm off my Enbrel, I don't have a rheumatologist, my husband isn't being supportive, my kids are expecting too much from me, ....... I know I need to eat better, reduce my stress levels, lose weight, and exercise. What I don't know is how am I supposed to do all this when I can barely walk?? Please, somebody out there in arthritis world give me a word of hope and how to.
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Grandpavan
Posted Sunday, May 17, 2009 2:01 PM


 

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Last Login: Today @ 4:59 PM
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Welcome to the board.  For some reason there isn't much action on the Psoriatic board but a lot of people on the Rheumatoid Arthritis board (RA Connect) also have PA and there are enough similarities between the two that I think you will get much more support if you post on the RA board as well.  (I don't have PA but I am a regular on the RA board.)  On the RA board there are a number of pinned topics at the top of the board and one is a letter to those without chronic pain.  At the bottom of the pinned topics is a welcome and general information that includes a link to the Spoon Theory that many of us find useful in explaining a chronic disease to others.  I hope you get the kind of support you are looking for.  God bless.

Age 82, diagnosed RA 12/2001, married since 1952, 4 sons no daughters, 4 grandsons 1 granddaughter.  Doing well on Methotrexate and Remicade.
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TammyRN
Posted Wednesday, May 20, 2009 12:40 AM


 

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Last Login: Wednesday, May 20, 2009 12:47 AM
Posts: 2, Visits: 4
Thank you, I'll definitely check that out.
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starshine
Posted Saturday, May 23, 2009 3:24 AM


 

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Last Login: Thursday, November 12, 2009 11:40 PM
Posts: 660, Visits: 603
Tammy, welcome to the site.  Are you on any meds?  I know Enbrel is very expensive and you may be elligible for free or low cost Enbrel.  Contact the company and see if they have a program.  Do what Grandpa Van suggested and go to RA Connect.  You will get much more support there.  I accepted your invite to join as your friend.  Thanks for asking.  There are lots of RNs on the RA Connect forum.  Your friend, starshine.
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js1207
Posted Sunday, May 31, 2009 2:25 PM


 

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Last Login: Sunday, May 31, 2009 2:15 PM
Posts: 5, Visits: 2
I read your post this morning and I'm here to offer some hope. This is a terrible disease (PsA) and unless you have it, I don't know how anyone could understand the pain and suffering that goes along with it.Take it one day at a time. Sounds trite, but it's the only way I get through the days. I've been diagnosed with PsA and Fibromyalgia for 7 years. I've been on a number of biologics that worked for a while and then nothing . . . . now my regimen is a weekly injection of methotrexate (20mg) and ultram for pain. I've been on very strong pain meds and I have reached a point where I don't want to be a zombie, so I deal with the pain and stay more clear-headed and reality-based so I can enjoy my life. I stay GRATEFUL - that's what really saves my butt. I'm grateful that I can breathe on my own, walk (sometimes I can't but most of the time I can,) see and read and hug and kiss my grandkids, adult kids and husband. I'm grateful for my dog, my home, my car, my friends . . . . you get the idea.

I can so easily go into a pity-party mode but I struggle against that and refuse to give in and feel sorry for myself.  There's always someone else worse off than me - lots of someones as a matter of fact. You're an R.N. so you know that. I'm a retired Marriage & Family therapist, drug & alcohol counselor, teacher, wife, sister, mother, grandmother and friend. Hope some of this has helped. Keep in touch. 

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Sandra Jankunas
Posted Wednesday, June 03, 2009 6:47 PM


 

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Last Login: Saturday, October 10, 2009 9:58 PM
Posts: 2, Visits: 3
Hello, I`m new on this site but I understand you all. I have Psoriatic Arthritis and I know how bad the pain can get. I was suffering too much until I was diagnosed. 5 years later I can tell you that the first thing is to find the best doctor you can and, also very important, is listen to your body. Excersice is one of the best things you can do. The only bad thing about it is that nobody can do it for you. You, have to understand that you are the only one that can really help yourself. This tipe of arthritis is very difficult to diagnose and it is very difficult for others to understand what we have. We look "normal". So, for my experience, I can recomend you to find a good doctor that listens to you, that gives you the right medication. But the rest depends on you. Change your lifestyle, live less estressfull, eat better, do some yoga, pilates, swimming, whatever you like. If your family don't understand you, give them information, you can find lots of it on the internet. They can't understand what they don't know. Ask your husband to go whith you to the doctor, he will explaine him very good.

That is what I have been doing and it has helped me a lot. I really hope it helps you too.......

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Keli in Florida
Posted Thursday, July 16, 2009 1:47 AM


 

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Last Login: Wednesday, November 11, 2009 3:06 AM
Posts: 480, Visits: 234
I can sympathize with you! Hope you are finding some support on the RA boards. I've had PA for over 15 years so I do feel your pain so to speak.
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SassySyl
Posted Saturday, September 12, 2009 4:54 PM


 

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Last Login: Wednesday, November 11, 2009 5:59 PM
Posts: 119, Visits: 148
I know your pain! You are not alone. People here understand everything you are going through in one way or another.
I have found the more fresh veggies and fruits I eat, the better I feel...but we have to be careful with certain ones like oranges. Also water exercise-slow movements--in a heated pool of 94 degrees or so. And don't forget the grains and fresh ginger root along with fresh garlic. I have noticed my joints actually have less pain and inflammation when I eat along these lines.
Hope to see you over at RA connect.

Warm Thoughts,
SassySyl

JRA, OA, PA, and Fibromyalgia

Medication Mix:
Humira 80mg; MTX 30mg; Prednisone 2.5 to 5 mg; Xanax 1 mg; Tylenol extra strength (when needed on very bad days); Darvocet 100mg


A smile is worth a thousand words and a kind word is worth more than a thousand smiles
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