How many of you have had PA since childhood?

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CatP

Posted Monday, June 15, 2009 10:29 AM

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Last Login: 2 days ago @ 4:49 AM
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My 2 1/2 yo daughter was recently diagnosed. It's not confirmed that it's PA since at this time she has no signs of psoriasis but she has dactylitis (sausage digits) so the doctor said it is probably PA. I'm worried about her future. I've done tons of research online and haven't found much info on the prognosis when diagnosed at such a young age. At this time hers is asymmetric with 4 joints involved.

I'm trying to find out how other adult childhood PA sufferers are doing to try to get an idea of her future outlook since the doctor is unable to tell us. Any info anyone can provide would be greatly appreciated. Thanks!

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Keli in Florida

Posted Thursday, July 16, 2009 12:24 AM

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Hi I'm really sorry to hear about your daughter. I started having psoriasis at age 11. My actual arthritis symptoms didn't begin til about 15-16, wasn't diagnosed until I was 21. There really isn't a lot of information out there i'm afraid. There is more info out there now then there was when I was first diagnosed but still not a lot to be honest. There is so much concentration on RA. Everyone says RA is more servere but depending on which type of PA you have and had how servere it can be as bad or worse than RA. I hope you find help for your little girl. Try and keep positive!

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kerbear

Posted Saturday, November 07, 2009 12:11 AM

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Last Login: Saturday, November 07, 2009 12:10 AM
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I started having symptoms at about 16, got all kinds of theories on what was wrong with me but no diagnoses until I was 30 and had already had a hip replacement. PsA from what I understand can be extremely aggresive or it can have no effect on the joints long term, so it's hard to tell. I think having such an early diagnoses will be a great advantage to you. I started having trouble with my hip when I was about 25, so in 5 years with no treatment my hip was so badly damaged that I was given 3 weeks from MRI to surgery. It has now been 6 years that I have been on treatment and there has been no further damage to the joints that are affected despite continuing pain. So, I guess what I mean to say is that the treatment/meds do make a difference, and hopefully her early diagnoses will prevent future joint damage and improve her outcome. I know it is frustrating, my daughter also has one of the more unusual diagnoses for kids and it's hard to not have access to the information and research, and to people who have the same issues!

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