http://www.stillsdisease.org/ 

Age 82, diagnosed RA 12/2001, married since 1952, 4 sons no daughters, 4 grandsons 1 granddaughter.  Doing well on Methotrexate and Remicade.

Also, the biggest concern is the virus mutating.  If it does, this will give your son a better chance to fight it because he will already have some antibodies.

Hope this helped. 

Sonya
Mom to Cassie, 5, diagnosed 14 months.

Well it was an eventful weekend...Alex was given Tamiflu as a preventative per the covering rheumy and his pedi.  His fever spiked again Saturday night (over 103) and we were almost off to the ER but it finally broke in between calls from the covering pedi.  (A big shout out here for his doctors and nurses...I was highly impressed by their responsiveness!!  We had six calls within a twelve hour, overnight period.)  The fever spiked again last night (103) so we went back to the pedi this morning...plus his cough got a bit worse.  The pedi decided to give him an antibiotic just to cover all bases as he has a history of respitory infections.

And only you will understand this...my hubby stayed home with Alex today...and a couple of hours ago he got a call from our daughter's camp...there a group of kids who were all displaying a stomach virus...could he come pick her up.  I was thrilled to think...yay...'just a stomach virus!'  So I'm guessing that's what this is because my dear hubby just remembered there was 'something' going around his workplace last week...nothing major unless your immune system is compromised. 

Man this new world we are living in is going to make me crazy!!!  Talk about about gray hairs...how do you all do this????

And yes, I am going to ask about Stills but he gets no rash other than eczema once in a while...so who knows?! 

Thanks!

Karen and Alex, 5, poly (among many other things)...and big sis Arianna, 7, ADHD
'We may not win every battle, but we will find a way not to lose!'

Oh My! I can only imagine what you all went through this weekend. I hope your son will be feeling better really soon. I'm glad to see your post. I have been thinking about your family and hoping everything had been improving. Don't forget to sneak in some time for yourself you deserve it. Take Care

Nancy

Dgter poly 4/09 6yrs old

Karen and Alex, 5, poly (among many other things)...and big sis Arianna, 7, ADHD
'We may not win every battle, but we will find a way not to lose!'

We have spoke before and compared our childs struggles not related to JRA. My child is dx as PDD-NOS , However  ADD had not been ruled out. The neuro she sees says at this age these 2 dx's overlap, so as she gets older it will become more apparent. This jra is just another challenge we have to face. So I understand what you mean by taking care of everyone and thing before yourself.

 For birthdays and holidays I always request a gift certificate for a either a massage, haircut or manicure and pedicure from my husband. Then I'm forced to go and unwind. I always look forward to it. It's already paid for and you don't want it to expire and lose the money so I go and it's great. Hope it's a good day for your family.

Take Care

Nancy

Dgter 6 poly 4/09

My daughter is ADHD...of the VERY busy, HIGHLY implusive, and EASILY distracted variety.  She is almost 8 and just finished second grade...we decided to medicate her in November and for us, it was the best decision we ever made.  Her quality of life improved dramatically (mine too LOL) and she finally has friends and self esteem. 

For Alex, he is also highly impulsive (lucky me..two of them) and it is really impacting him socially...he will be six in a few weeks and I plan on talking with the pedi about ADHD at his next visit.  But we highly doubt we will medicate him...he's super thin and with the JRA...I just can't think of adding another med right now.  Although it was heartbreaking to hear what happened when my hubby dropped him off at camp this morning...the kids were all saying 'oh Alex is here today'...as in ugh Alex is here today.  He wanted to go today because he's getting bored at home and since my husband was home with our daughter today I figured a couple of hours would do him good...but geez my poor baby did not need that kind of greeting. 

My birthday is in August and I will throw out some strong hints to my family as to what mommy really NEEDS for her birthday this year.  Great idea!

All the best!

I can only imagine what your days are like. My daughter had a cpt II test which showed mildly impulsive and mildy inattentive so far. I'd say it's more like moderatly impulsive. She finished kindergarten today and will go into first grade in sept in a intergrated classroom. She suffers from clinical anxiety, which right now is a big problem. Socially she has improved dramtically. I know that most people are against medication for add/adhd. I say to each his own. We have to do whats best for our children.

If the day ever comes when the Dr feels medication may help I will investigate and consider it. Right now we just try to get through everyday one day at a time. This JRA is more the focus right now.

Interesting that you're hubby is from L.I. Small world huh? We are in Levittown. Does he still have family here to visit? 

Hope your kids are all well now.

Nancy