Hurt too bad to drive!

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Awma

Posted Friday, July 03, 2009 9:15 PM

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Last Login: Sunday, November 01, 2009 10:00 AM
Posts: 118, Visits: 325

I've had 2 very long (10 and 11 hr) days at work this week because of the holiday coming up. Never off my feet more than a few minutes during the day.

When I left work tonight, I didn't think I could make it to my car. Then I didn't think I could drive home. My ankles and feet hurt so bad I just sat in the car and cried while I let the air conditioner cool me down! I did get home and was thinking of spending the evening just sitting in the car rather than try to walk in the house.

I tried to call my rheummy today to have my FMLA papers signed but because of the holiday weekend, they were closed today. I think I am going to call Monday and see if he will fill them out for me. These longer than normal days are just too hard to get through anymore! I don't see the dr again til August and he mentioned last visit that he wants to start me on Remicade infusions. I am MORE than ready for any relief after today!

Just venting this overly painful day and heading to bed for hopefully a good nights rest. (Yeh right!)

Happy 4th of July to all of you here!

Graves Disease diagnosed 2003. Diagnosed with RA April 2009. Methotrexate, Remicade beginning August 2009. Mobic, Folic Acid, Prednisone, Vit D

Married to Rick and blessed with 2 sons ages 29 and 21, 2 daughters ages 31 and 27. Grandma (Awma) to Makalya (9). Quinten (7), Zac (6) and Emily (4).

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Judy_smile37

Posted Friday, July 03, 2009 9:18 PM

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Last Login: Monday, November 02, 2009 10:30 PM
Posts: 1,465, Visits: 783

I'm so sorry to hear that you are in such pain. I hope you got to rest some today and are already feeling better.

Definately, get in touch or go see the rheumy on Monday. It sounds like you need the remicade sooner rather than later.

Judy

Start 1989, DX RA 1994 On Rituxan, plaquenil, mobic, minocycline- In remission.

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Donna Henry

Posted Friday, July 03, 2009 9:47 PM

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Last Login: Saturday, September 19, 2009 5:42 PM
Posts: 12, Visits: 27

I'm sorry to hear about your encreased pain. How do you stand on your feet all day?? I also, suffer from a lot of pain currently in my feet, hip, knee and spine. Its hard to sleep and get around. Im only 40?! Ha I walk around feeling like i have aged a great deal and not gracefully(like we dream of). I hope you can get off your feet and relieve some pain.

Donna

Dx: RA/Fibro/Sjogrens...Hashimotos (thyroid), Sleep Apnea, Hypertension, and, of course Depression

Rx: RA: Hydroxychloroquine, Gabapentin, Methylprednisolone, Diclophenac Sodium, Methotrexate, Folic Acid, Tramadol, SIMPONI ///Sjogrens: Evoxac, Restasis /// Depression: Effexor, Nortriptyline, Abilify /// Blood Pressure: Atacand, Norvasc /// Sleep: Sonata /// Thyroid: Cytomel, Levothyroxine /// Stomach Acid: Ranitidine

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Pam 14

Posted Friday, July 03, 2009 10:13 PM

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Last Login: Yesterday @ 10:50 PM
Posts: 476, Visits: 457

Awma - Oh, my gosh! I just read your post and it could've been written by me! I had a similar experience this past week. I can tell you that when you get that much pain in your feet/ankles, if they start to cramp your legs, my doctor told me to try wet very warm towels on my feet/ankles/legs. I just did this when I had a similar painful experience this week and it really helped. Try to keep them elevated, too, when you get off them. It also helps. Hope you can get some r & r this weekend and that you can get a hold of your rheumy on Monday. You'll be in my prayers! Pam

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Lissa Alls

Posted Friday, July 03, 2009 11:09 PM

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Last Login: Monday, July 06, 2009 11:05 AM
Posts: 1, Visits: 3

Hi, this is my first time here so I am not sure I am doing this correctly. I have recently had a fusion in my left foot that did not fuse and now have a broken screw in my foot. Am scheduled for surgery next month in Nashville, anyone else ever have this problem? I was no weight bearing for 3&1/2 months the first time, I really don't want to have to go through this again. Any suggestions.

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Grandpavan

Posted Saturday, July 04, 2009 12:26 AM

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Last Login: Today @ 3:46 PM
Posts: 4,406, Visits: 3,526

Awma, I hope you can get your FMLA papers signed and also get your Remicade infusion moved up. I'm a firm believer in early and aggressive treatment. I hope you get some relief. God bless.

Lissa, I haven't even had any surgery much less any broken screws. I hope you get it corrected without too much problem. God bless.

Age 82, diagnosed RA 12/2001, married since 1952, 4 sons no daughters, 4 grandsons 1 granddaughter. Doing well on Methotrexate and Remicade.

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teacherrobin

Posted Saturday, July 04, 2009 1:05 PM

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Last Login: Today @ 4:54 PM
Posts: 2,636, Visits: 1,435

Awma ~ I'm so sorry for the pain you are going through. It must have been an awful couple of days for you. I do hope you are able to get the Remicade going sooner, rather than later. Perhaps you could talk to your rheumy about a burst of prednisone to get you through until your FMLA goes through. May I also suggest some Crocs or similar type shoes, as well as some arch supports? Both of those things help when I have to be on my feet very much.

Keep your feet up this weekend and rest, rest, rest!

Blessings,

Robin

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Bob_S

Posted Saturday, July 04, 2009 5:41 PM

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Last Login: Today @ 9:54 AM
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Awma,
I feel so much for you and the pain you're going through. It's hard enough having to deal with this disease but having to work as well just adds so much more.
I've been off from work these last two weeks and have been using this time to wean myself down and hopefully off prednisone. I'm down to 1 mg a day but I'm coming to realize just how much the steroids have been helping me. I'm struggling now to get out of a chair and walking like and old man. I see my Rheumy next week and I'm sure we'll have a good discussion on what's next in my treatment plan. I was praying that in this last year since all this started that it might just go away but I'm beginning to accept that this is going to be long term.
I hope the family leave act works out for you. I will keep you in my prayers. God bless.
Bob

___________________________________________

"You're as happy as you make your mind up to be." - Abraham Lincoln

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Bekah M

Posted Sunday, July 05, 2009 12:06 PM

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Last Login: 2 days ago @ 10:55 PM
Posts: 1,464, Visits: 1,299

Hi Awma,

My feet used to be the bane of my existence when first dx with RA...I had no choice but to stop driving because of my pain and my reaction time was not the same with swollen painful feet and toes. Since not driving in months and not working anymore, I have very little foot pain these days...Thanks be! But when I did, I used my parrafin bath to keep the skin smooth, tight skin hurts with swelling. I wore only what shoes would allow swelling without pain....and I kept my feet as elevated as possible. I rubbed something from the health store called TOPRICIN on my achy feet and it did help some.

I wish you feel better very soon Awma...God bless you!

LISSA....That broken screw in your foot sounds terrible hon. I hope you get that fixed soon! I'll be praying for you!

Plaquenil 600mg., Metoprolol 200mg.,, Hydrocodone 10/500, Elavil 100mg, Lisinopril 20mg,Ativan, Omega Complex, Milk Thistle
Primary Lupus and SecondaryRA, Fibromyalgia/CFS, Raynauds, Sjogrens...

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