Arthritis Foundation Forum
Home   
Welcome Guest ( Login | Register )
     



We are adding Enbrel...hopefully! Expand / Collapse
Author
Message
Posted Monday, July 20, 2009 5:49 PM


 

Group: Forum Members
Last Login: Sunday, November 15, 2009 7:33 PM
Posts: 86, Visits: 164
Today my son saw his pediatric rheumy and he decided that we need to add Enbrel to the MTX injections, folic acid, and naproxen he is currently taking.  The arthritis is now active in his toes, knee, hips, shoulders, and at least one elbow (possibly both)...but the toes are the biggest issue as my guy doesn't walk for long without serious pain.  And forget wearing shoes all day...luckily his summer camp is very accommodating and we will be adding the JIA into his existing IEP once school starts in AUgust.

However my son was born in Russia and received the BCG vaccine at 4 months old (we adopted him at 8 months old) so he will most likely have an iffy negative, if not outright positive TB skin test.  We are working on the plan of attack if that happens because we need to make certain he does not have latent TB...which he could based on the indicence of TB in Russia.  I highly doubt anyone has had this happen...but if you have...what was your next steps?  I understand the Quantiferon test is unreliable in kids under 17.

I was pleaseantly surprised with the Enbrel Co-pay program...I have a high deductible insurance plan ($4000 deductible including prescriptions) but we got approved the co-pay program...up to $750 toward the monthly costs.  After the first month we should be at my deductible but then the card works toward the co-pay...this is a huge relief for us.  The rheumy wasn't certain we would qualify...so I decided to share in case anyone else needed this info.

I asked the rheumy about approving a stroller and he said to wait...he feels we will see great improvement in my son within a month...I hope and pray he is right!

So, that's our little update...we'll find out Wednesday about the TB skin test...but so far he's had no reaction...yay!

Karen and Alex, 6, poly (04/09)

 

Post #4218354
Top
Posted Tuesday, July 21, 2009 10:01 AM


 

Group: Forum Members
Last Login: Today @ 8:05 AM
Posts: 88, Visits: 256
Hi there!  Just wanted to wish you the best of luck with the whole TB test situation.  I'm crossing my fingers that all will go well, and that you will be able to start the Enbrel asap, because Enbrel changed our lives!  Please keep us posted, and try to stay positive through this all...I'll be thinking of you!  Vicky
Post #4218514
Top
Posted Thursday, July 23, 2009 2:19 PM


 

Group: Forum Members
Last Login: Sunday, November 15, 2009 7:33 PM
Posts: 86, Visits: 164
Thanks Vicky!

The TB test was fine...he had no reaction at all.  Now we are just waiting for the insurance company to give the go-ahead for the Enbrel...they will cover it, they are just being a pain requiring preauthorization.  Hopefully by tomorrow we will have it...if not we'll start next weekend. 

Karen and Alex

Post #4219249
Top
Posted Friday, July 24, 2009 3:51 PM


 

Group: Forum Members
Last Login: Sunday, November 15, 2009 7:33 PM
Posts: 86, Visits: 164
We got the go ahead...I'm picking it up tonight.  Although now I'm nervous about giving it to him.  And I was just reading the patient instructions for the multiple use vial...which is what the doctor said he was prescribing...and it scares me.  The nurse said it was the same as giving the MTX...according to DH...but in my reading, it looks quite different. 

I'll start a new thread on that. 

Karen & Alex

 

Post #4219432
Top
« Prev Topic | Next Topic »


All times are GMT -5:00, Time now is 4:39pm


Execution: 0.374. 41 queries. Compression Disabled.