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Posted Friday, August 14, 2009 5:52 PM


 

Group: Forum Members
Last Login: Today @ 8:05 AM
Posts: 88, Visits: 256
Hello Friends,

Hope all is well with everyone today.  Just thought I'd turn to my online community for a little more support and perhaps a bit of input.  My husband and I were really hoping to have a 3rd child, and now that our second has this JRA diagnosis, we're not so sure it would be the responsible thing to do.  I'm happy to say that Brianna's arthritis seems to be doing well.  It has become a part of life, and so long as she's not in pain (which she isn't right now, thankfully), we're managing.  When she was first diagnosed my whole world fell apart, but now we're at a point that we can be thinking of expanding the family!

I look at our kids and cannot help but imagine them with another sibling!  I know, it sounds crazy, but that's how we're feeling right now.  When I think of the future, I think of our kids supporting one another through thick and thin, and long for the opportunity for that to happen. 

So, I ran this by the OB/GYN who, not surprisingly, told me he'd have to look into the stats and get back to me.  The next email was to the ped rheumy, who gave me some stats.  Long story short, it looks like it would be about a 1:500 to 1:1,000 chance of the other sibling getting JRA.  There is another type of JRA (which Brianna does not have) that would change the stat to 1:100.  In her 20 years experience, she has only seen 2 cases where the sibling got a JRA diagnosis.

Am I being selfish to even be thinking of taking a risk, no matter how remote the chances?  I don't want to look back with regret...

What would you do?

Post #4225351
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Posted Saturday, August 15, 2009 3:56 PM


 

Group: Forum Members
Last Login: Sunday, October 18, 2009 10:26 AM
Posts: 58, Visits: 20
Hi Vicky

I posted on here last Spring about the same thing! I have 3 kids, all girls. My 2nd has JA and was Dx'd at her 4 yr well child visit. As my 3rd child was approaching her 4 yr well child visit, I had so much anxiety! I'm happy to say that only 1 child in our house has JA and that is usually the case. I have asked the dr's in our practice about this and they reassured me that it is very rare for more than one child in the fam to have it.

So I hope that helps ease you and also helps you realize that you are not alone in having these fears! So go on and make another baby!

Tracy,
mom to Cassie, 6 YO w/ JPsA
Post #4225537
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Posted Monday, August 17, 2009 9:29 AM


 

Group: Forum Members
Last Login: Wednesday, November 18, 2009 12:48 PM
Posts: 101, Visits: 134
I'm glad to hear your child is doing so much better and your family has learned to adjust to her diagnosis and know how to handle it now. I think that shows that you are ready to move forward. The chances are so slim that your next child will get it too, that I wouldn't even think twice about it. There are no guarantees in life for any of us, but we just have to live our lives and hope for the best. If, by some chance of fate your next child has arthritis too, you already know how to handle it and help them and arthritis doesn't inhibit a person from having a fulfilling life. If you want to have another child, I say go for it!
Post #4225749
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Posted Wednesday, August 19, 2009 10:39 AM


 

Group: Forum Members
Last Login: Today @ 8:05 AM
Posts: 88, Visits: 256
Thank you ladies!!  You don't know how grateful I am for your responses.  I'm pleased to say we've decided to go for it!  Also spoke with the OB/GYN and the rheumy, and both agree that the chances are slim, and that like Julie says there are no guarantees in life anyway...We are here for but a short time, why not live life to the fullest!?

We also had a f/u for Brianna just yesterday, and she continues to do well!! 

So, we're off to OBX on Friday with peace in our hearts!  Hope you're all doing well!!  Thanks again...

Post #4226228
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