I feel pretty alone in this. Even though my condition is genetic, I seem to be the only one in my family that has it. Others in my family are flexible and have elastic skin, but not to the extent that they would be clasified as having this condition. They also don't put credit in any diagnosed dissorder (which they tell me is spiritual and physical weakness) they think its all in my head. I do have others in my life who support me completly, which makes a world of difference.

Are there any other people on here that have Arthritis from rare conditions? Even though I have a "freak show" syndrom (said with "freak pride") I would like to know if there are other oddities out there.