MIXED CONNECTIVE DISEASE

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primalSCREAM

Posted Wednesday, October 07, 2009 7:45 AM

Group: Forum Members
Last Login: Today @ 3:55 PM
Posts: 118, Visits: 73

Hi all....I was just diagnosed with mixed connective tissue disease (overlap syndrome) ...Having a very bad day today....severe muscle weakness , joint pain and fatigue....just need to vent...I feel so helpless. The Rheumy wants me to go on major immune supressing drugs...I don't want to...especially with that swine flu out there...I've never felt so sick like this before....UGH...I'd love to hear from anyone out there who feels like this......Thanks

Diagnosed with Mixed Connective Tissue Disease Sept '09....Started prednisone therapy Nov 12 '09

If God has a plan for me I hope He lets me in on it........

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starshine

Posted Friday, October 23, 2009 2:39 AM

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Last Login: Thursday, November 12, 2009 11:40 PM
Posts: 660, Visits: 603

I felt like that too when I was first diagnosed. I didn't want to take those drugs. Then, one day I found myself unable to move by myself and was completely helpless. That lasted all day and the next day I started to get better gradually but it all happened again about 3 days later. I finally decided to take the drugs and am now in remission with MTX and Enbrel. I know the drugs are scary but I couldn't do without them. Good luck. Starshine

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Grandpavan

Posted Friday, October 23, 2009 2:01 PM

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Last Login: Today @ 4:59 PM
Posts: 4,499, Visits: 3,618

Our immune systems are terribly misguided so that some component of our system attacks our joints. Most of our immune system functions normally and the medications we take are intended to suppress only the misdirected part of our immune systems, leaving the rest of our immune system available to take care of us. Bad effects of medications are possible, but unlikely and usually reversible if a medication is stopped. Bad effects of untreated disease are likely and completely irreversible. Most of us choose the unlikely and probably reversible effects rather than the likely and irreversible effects. The choice is yours. God bless.

Age 82, diagnosed RA 12/2001, married since 1952, 4 sons no daughters, 4 grandsons 1 granddaughter. Doing well on Methotrexate and Remicade.

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