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Cindyss
Posted Monday, November 02, 2009 8:45 PM


 

Group: Forum Members
Last Login: Monday, November 09, 2009 11:36 PM
Posts: 563, Visits: 323
Had my fistula surgery on Thursday. Bad news is after all that 2 drs working together couldn't find a fistula. Dr said I just need to keep taking the antibiotics every day (which I've been taking for months) until we knock out the infection. I made an appt with my PCP and am going to get the name of an infectious disease specialist. This is gone on way too long. I'm still pretty sore from the surgery but on the mend. I have an appt next week with a breast oncology surgeon. The big problem now is that the RA is making the plastic surgeons not willing to consider some of the reconstruction options. Plus they say I would have to go off of every one of my meds. I called the RA dr today and am waiting for a call back to see what she thinks. I may end up with no reconstruction at all. If so I will see if the drs will reconsider if I heal well from the mastectomys. Has anyone out there had breast reconstruction at the same time as RA?

Cindy
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Pam 14
Posted Monday, November 02, 2009 9:20 PM


 

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Last Login: Yesterday @ 10:20 PM
Posts: 481, Visits: 459
Cindy - I am so sorry you are going through so much right now. I just wanted to let you know I personally have not had to go through breast cancer/reconstructive surgery with RA, however, one of my closest friends did go through it a few years ago. I know she, too, had to stop all her meds, but she did make it through the reconstructive surgery. And she's had really bad RA for over 30 years and been on everything under the sun for it. I'm hoping this will be helpful for you to know.

You are one strong woman to have the stamina you display. Please know I will hold you in my prayers today ... and in the days to come. Please keep posting and letting us know how you are. Pam
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Judy_smile37
Posted Monday, November 02, 2009 10:36 PM


 

Group: Forum Members
Last Login: Wednesday, November 18, 2009 9:55 PM
Posts: 1,471, Visits: 789
((( HUGS ))). Hang in there. This is such a rough patch. Call the onc that gave you the Rituxan. They know the good infectious disease (IDs) Drs. I don't think my PCP would have a clue who really is good. My onc referred me to one. She was top notch. In fact, she was the first one to figure out that my 105 deg. fever was not from an infection. Finally, we figured out it was a drug reaction. But, she said it days before.

Sending prayers that tomorrow is a better day.
Judy

Start 1989, DX RA 1994 On Rituxan, plaquenil, mobic, minocycline- In remission.
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LEFTY IN LA
Posted Monday, November 02, 2009 10:52 PM


 

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Last Login: 2 days ago @ 12:55 AM
Posts: 2,639, Visits: 1,683
PRAYERS FOR YOU. HANG IN THERE...YOU'RE A VERY STRONG LADY!
I'LL BE THINKING AND PRAYING FOR YOU!

God Bless all my RA Friends!

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Great Granny
Posted Monday, November 02, 2009 10:59 PM


 

Group: Forum Members
Last Login: 2 days ago @ 8:56 PM
Posts: 253, Visits: 578
I don't have any information or suggestions. I just want you to know that I'm praying for you. Tammy is right: you are one strong lady!

Hugs and prayers.
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mammakc
Posted Monday, November 02, 2009 11:19 PM


 

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Last Login: Today @ 4:04 AM
Posts: 108, Visits: 125
sorry that I dont have any useful info for you but wanted to 2nd others that you are very strong and hang in there




*STOP THE WORLD NOW, IM READY TO GET OFF!*
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Grandpavan
Posted Tuesday, November 03, 2009 12:10 AM


 

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Last Login: Today @ 2:17 PM
Posts: 4,499, Visits: 3,617
I'm sorry that the surgery was disappointing. I hope the breast surgery goes well and they are able to accomplish adequate reconstruction. My prayers are on the way for you. God bless.

Age 82, diagnosed RA 12/2001, married since 1952, 4 sons no daughters, 4 grandsons 1 granddaughter.  Doing well on Methotrexate and Remicade.
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Gramma
Posted Tuesday, November 03, 2009 8:40 AM


 

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Last Login: Today @ 1:43 PM
Posts: 2,190, Visits: 2,957
Cindy dear,

I'm so sorry you had to undergo unnecessary surgery. That must be twice as painful! I would have thought that the fistula would show up on colonoscopy or lower GI barium xrays.

Try to rest and recuperate, and wait for your rheumy to tell you what drugs you can use waiting for the breast surgery. I believe you can take prednisone and pain meds if you have to go off your RA medications.

You'll be in my thoughts and prayers,

Hugs,
Gramma Ellie
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