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teacherrobin
Posted Tuesday, November 03, 2009 8:37 AM


 

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Hi all. Another teaching week starts today, as yesterday was a day off for the students while teachers went to the annual greater Nashville area Christian School In-Service. The drive was a little over an hour each way and just about did my back/hips in, as did the constant sitting for each session. Between that, the fact that I'm off all of my RA meds (except steroids), and I'm working 60 hour weeks just to keep up, I'm beyond exhausted and in a whole lot of pain. The last several days have been nearly a constant pain level of 7 or 8. We have two open houses this week, so there is even more work to be done and days to be worked. I probably won't have a day off until two Sundays from now.

I'd sure appreciate your prayers for relief from the fatigue and pain. Both are making it quite hard to get everything accomplished. Thank you so much!

God bless,

Robin
Post #4254511
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WarmSocks
Posted Tuesday, November 03, 2009 8:56 AM


 

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((((Robin))))
That sounds really rough. I'll be praying for you.

 

+WarmSocks
______________________________________________________
Aiming for NED
  Plaquenil, Sulfasalazine, Methotrexate, Folic Acid, Feldene, Prilosec, Verapamil, Maxalt, Diclofenac Gel, vitamins

Post #4254524
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Gramma
Posted Tuesday, November 03, 2009 9:20 AM


 

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Dear Robin,

Of course you will be in my prayers! Sorry you had to suffer so on your trip to the conference. Did you take your seat cushion with you? When my lower back was giving me fits, I never went anywhere without my cushion (including church, ).

How long have you been off Dmards? Why? Isn't there something you can take?

Please try to pace yourself this week. You work so hard and give so much of yourself to your students. I really admire your dedication!

Hugs, Spoons & Prayers,

Gramma Ellie
Post #4254532
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Nikki Lynn
Posted Tuesday, November 03, 2009 9:26 AM


 

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Robin,

I'll be sending prayers your way, believing things will get better soon.

Lynn

Rituxan....In Remission after 8 long years

“Over the last few centuries, a process developed for separating fact from fiction, and it is called science…’the crash testing of ideas.’”

The Microbial Metagenome, Debunking the Marshall protocol

 

http://whatstheharm.net/homeopathy.html

 


 

Post #4254537
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Roger Mitchell
Posted Tuesday, November 03, 2009 9:36 AM


 

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Without a dobt you have them from me. I am sure your students are praying too, they need you.

Roger
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Tommy4
Posted Tuesday, November 03, 2009 9:58 AM


 

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Robin,

Sending prayers your way you have to be getting sore off of all your meds.

Tommy
Post #4254580
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Jeans
Posted Tuesday, November 03, 2009 10:21 AM


 

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Prayers coming your way. Please keep your chin up and take breaks when possible. Jeanie

'What I do today is important because I am exchanging a day of my life for it.'

Author: Unknown
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Aprilfreelance
Posted Tuesday, November 03, 2009 10:43 AM


 

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Lifting you up in prayer!

Age 36, Dx May 2009, waiting to start new meds after bad experience with Plaquenil.

The Bible in a nutshell: First half - be nice to God; second half - be nice to people.
Post #4254630
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Great Granny
Posted Tuesday, November 03, 2009 10:44 AM


 

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I'm sending prayers and gentle hugs your way.
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CallMeSteph
Posted Tuesday, November 03, 2009 11:01 AM


 

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I am sending prayers, gentle hugs, and all the spoons I can spare your way. I hope you are able to make it through and find a few minutes to relax until you are able to have a day off.

Take care,
Steph


22, diagnosed 12/07, Plaquenil, Methotrexate, Folic Acid, Leucovorin Calcium, Orencia, Prednisone, Lexapro
Post #4254652
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mammakc
Posted Tuesday, November 03, 2009 11:50 AM


 

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oh ((((((((((((robin))))))))) defintly praying for you to have strength and less pain! "I dont know the circumstances of why you are off meds but hope things calm down for you soon!




*STOP THE WORLD NOW, IM READY TO GET OFF!*
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Barbara Schwefel
Posted Tuesday, November 03, 2009 12:02 PM


 

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Hi Teacherrobin.
Hope things start to look up for you soon!Please remember to pace yourself this week because not only do your kids need you, but we need you too!!LOVE,WARM HUGS,And PRAYERS my friend!!!!!!

A SMILE IS THE LIGHT IN THE WINDOW OF YOUR FACE...IT LETS PEOPLE KNOW YOU'RE HOME.

Author unknown



Diagnosed 08/09 Am currently on Methotrexate,Folic Acid,Nebumetone,And Hydrocodone for pain.
Post #4254736
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teacherrobin
Posted Tuesday, November 03, 2009 12:25 PM


 

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Gramma Ellie,



I'm allergic to Sulfasalazine, Plaquinil did my stomach in, MTX attacked my lungs, and Arava gave me a whopping case of peripheral neuropathy; thus, I'm not taking any DMARDS. After two very serious infections, none of my doctors wants me on a biologic (at least until the IL-6 inhibitors come to market). Unfortunately, I'm becoming one of those that steroids eventually become less effective for the longer they are used. I've been on them constantly for nearly 4 years now.



Thanks for your prayers, everyone! "I can do all things through Christ who gives me strength."



Robin
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Grandpavan
Posted Tuesday, November 03, 2009 1:08 PM


 

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I'm very sorry that you are having even more problems than usual recently. As usaual, you are in my prayers. God bless.


Age 82, diagnosed RA 12/2001, married since 1952, 4 sons no daughters, 4 grandsons 1 granddaughter.  Doing well on Methotrexate and Remicade.
Post #4254812
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Pam3
Posted Tuesday, November 03, 2009 1:08 PM


 

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Dear Robin,

I've been having some Internet issues today, so I'm just now able to respond to your thread. As always, I'm praying for you and your situation. I wish I could be there to help lighten your load.

Take Care,
Pam
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MaryFran
Posted Tuesday, November 03, 2009 1:55 PM


 

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Robin - My thoughts and prayers are with you! Sounds like you are having a horrible time and with no meds to help you through. As I said the other day, many people don't realize how hard teachers work. They should follow you around for one day and they would better understand why you want higher pay and better benefits! I do hope you find some relief. Can you get a teacher's aid or some of the parents to help you with the open house preparations or other things on your plate? Don't know how bad the peripheral neuropathy was when you were on Arava, but when I had it from something, the doc put me on neurontin (sp?) and it helped. Maybe that would allow you to go back on Arava. Just a thought. Take care of your self, Robin. We are all here for support.

Mary H.



Plaquenil, Medrol, soon to be Orencia, Folic Acid, Vit. D, B12, Calcium, + others unrelated to RA
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Chris Braile
Posted Tuesday, November 03, 2009 10:52 PM


 

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Praying for you....... are you open to trying some alternative stuff in the meantime? It sounds like there's not much else out there for you right now..... (((hugs)))

SAHM/homeschooler Diagnosed 2009 with RA
Diet (no nightshades/gluten), supplements (fish oil, cal/mag, Vit D, Vit C), Chinese herbal medicine (3rd Coast Herb Company), acupuncture, yoga
Post #4255351
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Pam 14
Posted Tuesday, November 03, 2009 11:24 PM


 

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Robin - My prayers are with you, too, my friend! You have remarkable strength and stamina and I'll be praying that good brings you comfort and renewed strength. Those precious children of yours need you, so please try and take good care of yourself. Pam
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Gramma
Posted Wednesday, November 04, 2009 8:39 AM


 

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Dear Robin,

I'm sending strength to you today! Hope you can feel it.

It's just awful that the drugs that were supposed to make you better have made you sicker instead. I hope that Actemra will start being available soon.

http://www.arc.org.uk/news/DirectNews/Article.asp?ID=19397615&Year=2009&Month=10&NameOfMonth=October

Good Luck this week,

Gramma Ellie
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Captex
Posted Wednesday, November 04, 2009 8:46 AM


 

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Blessed are those who teach.

My prayers for you are on the way!


God Bless,


captex

I'm off Prednisone! and off Bactrim, currently taking Atenenol, Albuterol, Glipizide, Lozol, NOMORE NSAIDS and trying to lose the 30+lbs that I gained recently from Prednisone. Just added Arava. Diagnosed with RA in 1982. Fighting ILD. I'm dealing with my Diabetes and I've only begun to truely understand RA.
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