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Any help for the non insured?
Posted by: Debi McConnell on December 18, 2008 at 4:00AM EST

Blessings to you all.

February of 2008 I was diagnosed with sciatica because of severe pain in my buttox. The doctor gave me naprosyn, flexeril and a shot of steroids, sent me home and said to rest for two weeks on ice and heat. I did it pretty much, (it's hard for a 40 yr old active woman to stay in bed for two weeks straight) and afterward, the pain became more and more apparent the more I moved around. I started seeing a chiropractor whom x-rays weren't a requirement. After about 3 or 4 visits I was not getting better and felt I didn't need a stranger to crack my back for 60 bucks a pop. I went back to the clinician in April for another appointment and again they gave me a handful of pills, a shot and sent me home with instructions for rest, ice and heat. Over the next couple of months I looked online for help by streching and excercise. This only increased the pain. During the summer, August I think, I was in so much pain I went to the hospital to get at least a shot or some kind of relief. The doc on call was less than happy that my problem had been going on for over 6 months and I had no half attached limbs even though I waited until about 5am to go and was the only patient in the ER. He gave me a hand full of pills, a shot and told me to go home and rest with heat and ice... A month later, I went to another hospital for another opinion, this one actually gave me an x-ray and explained more about what could be going on... More sciatica education. I went to this hospital about 3 times because they would help me (I have no insurance and have not been working outside of the home all year) and told me that it was ok to come back to their 'non-emergency, urgent-care' department.  They informed me that I would need to see a Pain Management Specialist to at least be able to function with some sort of normalcy. I had my first appointment in November 08 and the doc was so very helpful, he looked at my x-rays, showed me that I had lots of arthritis in my SI joints, degenerative discs and that my bottom vertebrae(?sorry i'm not educated in many medical terms) was not extreme but it was closer together than the others which would cause him to think it may be some sort of bulging disc or something of that nature. He immediately said that it was not sciatica. Anyway, he talked to me and told me that he would be able to help, wanted me to take some muscle relaxers, anti-inflammatories, nerve and pain meds, no heavy lifting, no straddling motorcycles or going 4-wheeling..lol. Then on the next visit we would do a spinal injection. That term scared the crap out of me, but I just wanted relief so I did exactly what he said.  About a week and a half before the next visit, I was in excrutiating pain and my fiance' wanted to take me to the hospital to get a shot or something to relieve the pain until I could get back to the PM doc. I didn't want to screw up my chances at receiving the spinal injection so instead of going to the hospital, I called to see what the chances were to have my appointment moved up. They called me back the next day and said that the doc wanted me to come in, but I needed to have payment up front (no insurance). I couldn't do it so they scheduled me for that Friday (the original appt was for the following Wed). I stuck this pain out all week in such high hopes that I was going to receive this incredibley frightening spinal injection that would provide an enormous relief, even if it was only for a day or two.  This time when I got there, he wouldn't give me a shot because he said he didn't know what he was treating... HUH??!! He said he would up my meds... My spirits were completely shattered! Tears welled up in my eyes, I asked if he could please just do something to relieve this pain and on that note, he asked me to follow him and he led me out into the waiting room. Again, I do not have insurance, not working and my fiance is not a millionaire. The first visit was near about $200, meds were about $100 and the second visit he charged $85 and I waited in the exam room for an hour before he came in for 5 minutes and sent me away crying. 

My question is this: Does anyone out there know of a program or any type of assistance to help with medical or a way to get this diagnosed and treated properly. Even on a payment plan?? I have not worked the entire year of 2008 due to the severity of the pain. It hurts when I walk, bend over to put clothes in the dryer, climb up stairs, sit for long periods of time, cough, sneeze, I even wake up in tears during sleep because of spasms or maybe I rolled over wrong. If I lay on my stomach with my head facing to the left, I wake up fine however if I lay with my head facing to the right, it sticks like that and is very painful to straighten back out.  This causes alot of pain in my upper left side of my back, left arm and neck area, don't know if this has anything to do with the lower back and whenever I tried to explain this as well as ankle and knee pain, the doc would only want to address the hip/lower back pain and tell me that the others are from something else. They have all increased over the past year.

My fiance and I love to take rides and it is harder and harder for me to straddle a bike which the doc says not to do anyway and I don't, I have been using the truck. So this pain has also put a damper on our extra cirricular activities, not to mention our sex life!!

Any information will be most appreciated.

Happy holidays and good luck to you all!!

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(4) Comments
Posted by: Kathy on December 26, 2008 6:59AM EST
Going through the same thing although I have been diagnosed with "degenerative disc disease", "inflammatory arthritis" but not specifically RA but that is what it acts like. I also have no insurance. I have had to taper off Cymbalta for nerve pain in my feet due to the cost (400 a month) even though it helped a lot. Have had the epidural steroid injection in my back (750 bucks paid up front) which helped for a short period of time. I have never had much luck myself with steroid injections in my knees either. I am still "working" as far as my social security disability rejection says even though I just run the cash register in the store my husband and I run. A less expensive way to try to get some relief is with herbal supplements which is what we sell in our store. I have found more relief with the combination of fish oil (Omega 3's), MSM, and garlic. Sounds like it would do nothing, but they are all natural anti-inflammatories that help some. Not a cure-all but may be worth a try.

Posted by: Kathy Anderson on December 26, 2008 9:32AM EST
Also, one other comment. Whoever told you to spend 2 WEEKS in bed was WAY OFF BASE! A day or two to rest, then GET UP AND MOVE. Yes it will hurt to move but that is absolutely necessary to keep your joints functioning!

If all you can do is walk to the end of your sidewalk and back, then DO IT. Gradually increase your activity. Ice OR heat, whichever feels the best. I cannot tolerate ice at all, so use heat whether a moist heat pack, or soaking in a bathtub with sea salt and essential oils. (not only does that feel good, but it smells good and using lavender can be very relaxing and de-stressing, and the oils are great for your skin).

I have lifted weights in the past but am currently unable to do so but DO have plans to gradually return to light weights, resistance bands, machines at low weight. I currently walk (with a cane outside) with my dog 1/2 to 1 mile in the mornings, and frequently throughout the day take short walks. It is winter and icy so I am careful to use my cane outside, and have something called "yak traks" or "ice cleats" that I put over my shoes to help with icy conditions. The last thing I need is to fall so am very careful where I walk.

Find a general practitioner you trust for maintenance and referrals to specialists if needed. They are cheaper than specialists and can usually manage day to day stuff like prescription refills, recommending assistive devices. You DON'T need a prescription to get a cane. Get an adjustable one with a padded hand grip, one that is comfortable for YOU. Use it in the hand opposite the side that hurts.

Sleeping, use pillows for extra support between your knees when lying on your side, under your knees when on your back. Myself, I find it more comfortable to lay on the side that hurts! with a pillow between my knees. Hope this helps you!!!!!

Posted by: jOAN cOIRO on December 30, 2008 6:19AM EST
sO very sorry to hear of your sickness.I my self for the last 2 weeks have been in so much pain in my legs I dont know what it is yet but I have maicade y dont u apply for it. Good luck Joan

Posted by: Kathy on January 1, 2009 8:07PM EST
Joan. I have been turned down by 3 different private insurance companies due to past medical history. I do NOT qualify for our local Minnesota Care due to "too many assets" which also disqualifies me for our community care. I have been turned down initially for SS disability but am waiting on the paperwork to file my first appeal. Even if I do get on disability, it is a 2 year wait for Medicaid due to federal regulations. Hopefully that waiting period will be changed soon. So, in the meantime, I am completely self-pay and have a couple thousand in bills racked up right now that I am having trouble paying. Keep me in your prayers!!!

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