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Anyone Hear of Dercum's Disease? Similar to Fibromyalgia.
Posted by:
Celeste on
September 3, 2009 at
10:19AM EST
Hello all, I have previously been diagnosed with osteoarthritis and another arthritis in my spine, shoulder and thumb. I have received injections that have seemed to help alot. I also was diagnosed with fibromyalgia many years ago. I now have painful fatty tumors (some are so small I thought it was fibromyalgia pain) down my sides of my body, sides of my legs and a few in my arms and back. I have recently found out about a disease called Adiposis Dolorosa or Dercum's disease. This disease has many similarities to fibromyalgia with the body aches and sleeping problems, however, there is also some memory loss, and confusion that is associated with it. Along with the body aches, joint aches and weight gain that are similar to Arthritis. Does anyone know of any research being done on Dercum's disease? Many doctors I have spoken with have never heard of it. I visited the Minnesota State Fair yesterday and visited the Arthritis Foundation booth, The people at the Arthritis Foundation Booth had never heard of Dercum's disease, but did take down some info about this disease. I am hoping that since this disease is so similar to other diseases that the Arthritis Foundation have information about ,that the Arthritis Foundation will pick up this disease also to provide people with information about. Sort of help to get the word out about this disease that I believe alot of people have and have not been diagnosed with. Any help on research about this disease would be helpful and appreciated. Celeste.
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