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Help, but not for me.
Posted by:
Tanya Heller on
March 13, 2009 at
3:42PM EST
My heart is heavy. My daughter was diagnosed with RA on her 19th Birthday. She had aches and pains throughout high school. She was very active and in retrospect I now notice her athletic ability declined over her 4 years of high school. Her father never saw his grandmother walk. They called her "little grandma" and as long as he could remember she was in a w/c and could not straighten her body. Immediately after her diagnosis she was put on Methotrexate. She did get really depressed and cried all the time (first year of college). She then went on an Embrel Study for about 2-3years. During the study she went off and decided she didn't want to be treated for RA anymore and didn't want to talk about it. 2 years ago I began to notice how disfigured her hands were becoming and now she can barely use them. Her fingers are not functional but she rarely complains of pain. She lives independently, holds down 2 jobs and is beautiful inside and out. Except when it comes to talking about RA. She will not talk about it, see her Rheumotologist (over 5 years), or research it. I don't know how to approach it. She will be 29 this summer. Did anyone go through this? Can you point me in a direction of some help? Thank you!!
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