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Is this the way it is?
Posted by: Roni Flaherty on September 21, 2009 at 7:35PM EST

For years I have known I  have arthritis.  However, it was not until I tore my miniscus that I was actually diagnosed.   Recently my dr did blood work to be able to tell if it was RA or not.  I came back neg. for Ra.  However, my pain is in the joints of both hands, my shoulders, my lower spine, both of my hipts,both knees, and my toes.   The worst being hips and knees.  Also, I have lots of pain in all of my lower muscles...even my butt muscles.  My calves and thgih muscles are always sore.  When I stand after sitting or laying for even a short time, it is difficult moving....and never really seems to loosen up ...always feelins sore and stiff.  Bending t oeven lower myself onto the lue is difficult.  The only thing the Dr., did..was give me celebrex and send me on my way. 

I am 45 and can barely go up or down a flight of stairs.  Is this normal?  Is this the way its just going to be forever?  I thought oesto was the lessor of the two arthritisis. 

Comments, opinions, advice?  anything will help. 

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(4) Comments
Posted by: Pamela E on September 22, 2009 1:07PM EST
Hi, I am in the same position. I was told last week I too am Negative for RA. I share the same symptoms as you, except my feet and ankles hurt instead of my toes. My calves only hurt when I'm sleeping. Now I don't know where to turn or what to do? Maybe we could keep in touch with each other to see if any doctors figure this out? I live in North Carolina, also 45 and pray this is not the way I have to live the rest of my life.

Posted by: Cindi Forbes on September 22, 2009 2:11PM EST
Hi, I'm not as bad as the 2 of you,but recently diagnosed w/severe arthritis in my right hip. Doc told me to take reg (coated) asprin for pain & benadrill for anti inflamitory. seams to help better than advil or aleve. dont know what type of arthritis, but i do know that all they can do for me is THR. I'm 47, and god bless you Roni & Pamela. I'll be praying for you too.

Posted by: Janet Reimche on September 22, 2009 4:40PM EST
I hate to make matters worse here, but I've had spondylitis for eleven years. All areas of my back are in pain 24/7. I have six compression fractures in my upper back and two shattered disks in my lower back.
When I had insurance, I couldn't get a doctor to understand how dire the situation was, and I eventually had to quit working.
I've been without insurance and medical intervention for five years now. I spend most of my time in bed.
Since the government has made several decisions against me, insisting that I'm not disabled, I have no resources whatsoever.
My advice: get your point across to any doctor you have access to, whether it means being rude, obnoxious or a pain in the neck, any way you can! Don't let anyone minimize what you are going through unless you want to end up like me.

Posted by: SassySyl on September 24, 2009 11:26PM EST
Roni and Pamela, please educate yourself about RA and PsA and other forms of arthritis that are similar to RA and Lupus then go see another Dr. A Rheumatologist is the one you need to see. These Drs are the ones that diagnose and treat these diseases.

Your symptoms need to be addressed by someone who knows what to test for and look for as they study your body. PCPs and GPs sometimes miss the silent things that Rheumy's are looking for.
I wish you both success in finding the answers and correct treatments.

Warm Thoughts,
Sylv

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